High-Risk Pregnancy

Fetal hydrops

I'm wondering if anyone has experience with fetal hydrops and a dandy walker malformation in the brain.
I am 19 weeks and my baby girl was diagnosed with that at 12 weeks. Thw hydrops around thw neck measured 17 mm. We've had an amnio and everything is normal. They don't know what is causing the hydrops. We are being referred to other specialists and were told a few times baby will have problems and told we can terminate (which isn't an option for us). I've hear hydrops can resolve on its own, I just want to hear from others if they have experienced this.
Thank you!
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