Larsens syndrome

Boslove

Hey, has anyone dealt with Larsens Syndrome? If so what was/is your experience?

My DS is 4 days old with an unknown diagnosis, genetics and ortho are thinkn larsens but theres tons of tests we are waiting for.

christinemelanie

@Boslove I'm waiting diagnosis for my DD. They're also thinking Larsen's. Wondering if you've heard back?