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October 2015 Moms
EVOXCHIC
member
Rant - My vacation from hell!
EVOXCHIC
member
I am currently 25w5d and have had a very rough road since week 6....
Started out with terrible morning sickness. I was in an out of the hospital for the first 3 months, sometimes being admitted for up to 2 weeks at a time. I couldn't even take a simple sip of water without being sick. I was then put on a Zofran pump for roughly 3 weeks, which didn't help much as I was back in the hospital before I knew it.
I suffer from CVS, cyclic vomiting syndrome so I get very sick and nausous aside from being pregnant and am always in and out of the hospital. My doctor told me in the beginning that pregnancy will either make the CVS better or worse... of course the end result is worse.... much much worse!
As a last resort, my doctor gave me a picc line in my arm so I could give myself 24/7 iv fluids at home with Phenergan medication mixed in each iv bag. This worked wonders!! I was able to eat again and even gain some weight. However, I got about 4 uti's from this which my doctor warned me about.
I had a vacation planned to come and visit my mom in Florida (I live in PA) for months now. My doctor decided to slowly wean me off the iv fluids and Phenergan before leaving so I wouldn't have to travel with this pump or all of the supplies needed daily. I was doing great. Tapered off for about 3 weeks without getting nausous once.
Luckily, my doctor have me the green light to travel! I was so excited but he still wanted to keep the picc line in for a other 2 weeks or so just to make sure I was in the clear. No big deal, just no swimming for me.
Flew to florida on a Tuesday morning. Tuesday afternoon I flushed my picc line with saline and heparin and within 45 minutes I broke out in head to toe chills, terrible body cramps, migraine and my finger nails were blue. My mom is a nurse for over 35 years and was like, "hmm, it seems like your picc line could be infected." Took my temperature, it was 100.4, took tylenol and made myself fall asleep. Woke up about an hour or so later and I felt fine.
Called my OB back home and he said to keep an eye on my temp and if it went up or stayed the same to give him a call back. He also said my bloodwork and glucose test from the previous day came back normal so he didn't think I had an infection.
The next day I woke up with a rash all over my face and neck. My mom looked at me and said it was a petecki rash (probably spelling that wrong) almost like broken blood vessels under my skkn, very strange. I decided to wait until later that night to flush my picc line to see if this happened to me again.
At 7pm, flushed my lines and at 7:45, like clockwork the reaction happened all over again. This time it was much more severe. I could barely make it from the patio to the bedroom. It was 97 degrees outside, I was in a hoodie and sweatpants shaking uncontrollably and my jaw was chattering as well. Took tylenol and made myself go to sleep. An hour later I was fine, but had a fever of 101.9... Called my OB, he said to go to the ER immediately and have my picc line removed.
Went to Winnie Palmer hospital for women and babies in Orlando. It was the nicest hospital I have ever been to, and I'm a frequent flyer to hospitals lol.
Long story short, I waited 10 hours to get my picc line removed and spent 9 days in there. I was borderline septic which could have put me into premature labor or worse, which I can't even think about right now.
My blood cultures all came back with gram negative rods and was later identified as Acinetobacter Guillouiae bacteria, very very severe and very very rare. The infectious disease team wasn't even familiar with this so it was hard for them to find an antibiotic to take that was safe for the baby as well as myself.
I had to cancel and rebook my fight that I missed and I am now scheduled to go home on Monday. I feel like my life has become murphys law!!!! I am only 27, too young for all of this.
On a positive note, little Zoe Renee is very healthy weighing in at almost 2 lbs and kicking me every chance she can get. I am really hoping the next time I have to visit the hospital is my due date, October 4th.. Wishful thinking I know
Started out with terrible morning sickness. I was in an out of the hospital for the first 3 months, sometimes being admitted for up to 2 weeks at a time. I couldn't even take a simple sip of water without being sick. I was then put on a Zofran pump for roughly 3 weeks, which didn't help much as I was back in the hospital before I knew it.
I suffer from CVS, cyclic vomiting syndrome so I get very sick and nausous aside from being pregnant and am always in and out of the hospital. My doctor told me in the beginning that pregnancy will either make the CVS better or worse... of course the end result is worse.... much much worse!
As a last resort, my doctor gave me a picc line in my arm so I could give myself 24/7 iv fluids at home with Phenergan medication mixed in each iv bag. This worked wonders!! I was able to eat again and even gain some weight. However, I got about 4 uti's from this which my doctor warned me about.
I had a vacation planned to come and visit my mom in Florida (I live in PA) for months now. My doctor decided to slowly wean me off the iv fluids and Phenergan before leaving so I wouldn't have to travel with this pump or all of the supplies needed daily. I was doing great. Tapered off for about 3 weeks without getting nausous once.
Luckily, my doctor have me the green light to travel! I was so excited but he still wanted to keep the picc line in for a other 2 weeks or so just to make sure I was in the clear. No big deal, just no swimming for me.
Flew to florida on a Tuesday morning. Tuesday afternoon I flushed my picc line with saline and heparin and within 45 minutes I broke out in head to toe chills, terrible body cramps, migraine and my finger nails were blue. My mom is a nurse for over 35 years and was like, "hmm, it seems like your picc line could be infected." Took my temperature, it was 100.4, took tylenol and made myself fall asleep. Woke up about an hour or so later and I felt fine.
Called my OB back home and he said to keep an eye on my temp and if it went up or stayed the same to give him a call back. He also said my bloodwork and glucose test from the previous day came back normal so he didn't think I had an infection.
The next day I woke up with a rash all over my face and neck. My mom looked at me and said it was a petecki rash (probably spelling that wrong) almost like broken blood vessels under my skkn, very strange. I decided to wait until later that night to flush my picc line to see if this happened to me again.
At 7pm, flushed my lines and at 7:45, like clockwork the reaction happened all over again. This time it was much more severe. I could barely make it from the patio to the bedroom. It was 97 degrees outside, I was in a hoodie and sweatpants shaking uncontrollably and my jaw was chattering as well. Took tylenol and made myself go to sleep. An hour later I was fine, but had a fever of 101.9... Called my OB, he said to go to the ER immediately and have my picc line removed.
Went to Winnie Palmer hospital for women and babies in Orlando. It was the nicest hospital I have ever been to, and I'm a frequent flyer to hospitals lol.
Long story short, I waited 10 hours to get my picc line removed and spent 9 days in there. I was borderline septic which could have put me into premature labor or worse, which I can't even think about right now.
My blood cultures all came back with gram negative rods and was later identified as Acinetobacter Guillouiae bacteria, very very severe and very very rare. The infectious disease team wasn't even familiar with this so it was hard for them to find an antibiotic to take that was safe for the baby as well as myself.
I had to cancel and rebook my fight that I missed and I am now scheduled to go home on Monday. I feel like my life has become murphys law!!!! I am only 27, too young for all of this.
On a positive note, little Zoe Renee is very healthy weighing in at almost 2 lbs and kicking me every chance she can get. I am really hoping the next time I have to visit the hospital is my due date, October 4th.. Wishful thinking I know
Re: Rant - My vacation from hell!
I hope this is the last of the craziness for you during this pregnancy and that everything just calms down.