Special Needs

Anyone's LO have Muscular Dystrophy?

My son has not been diagnosed with it, but he has several symptoms that are making me wonder if that's what is going on with him. He was a floppy baby, and has low muscle tone. He is developmentally delayed. He didnt sit unassisted until 12 months, crawled at 18 months, and still isn't walking at almost 24 months. He has hypermobile joints in his wrists and elbows. Does anyone have a LO with MD? Can you share your child's symptoms with me? 

Re: Anyone's LO have Muscular Dystrophy?

  • I think you should go to your pediatrician to get him checked out.
  • Yeah I've done that. In fact, we've seen the pediatrician, the developmental pediatrician, neurology, the neurosurgeon, PT, ST, and OT. I was asking if anyone else's LO has it, not what I should do. 
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  • What kind of musukar dystrophy does he have? My dad has Charcot muscular dystrophy as well as some other things and have always had problems. There are tools and certain things that can help your child with his every day life. Like certain utensils that can help him eat and grip better. There is therapy that can help the pain and being uncomfortable. Even shoes when he learns how to walk and run. Talk to a specialist on what you can do to help him develop. :)
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