Infertility Veterans

How are you?

Hey ladies,

Hope all is well.
What's on your mind lately?
What have you all been upto?

Thinking of you all-

;)

Me (32) DOR, elevated NK Cells/ 2 copies of MTHFR mutation/ MH (35) azoo/high DFI   (TTC#1 since 2009)

IVFs#1-4: (4/10-2/12) all BFN

Surprise Bfp (9/11) - c/p

DS IUI#1-2 (9/12, 10/12) - BFN

DS IVF: (11/12) - BFN

DE/DS IVF#1: (10/13) - 2 day 3 embies transferred-BFFN

FET of 2 day 6 blasts: (12/13) - c/p

DE/DS IVF #2: (4/14) - 1 day 5 blast transferred...BFFN...again.

FET 5/14: 1 day 5 hatching blast transferred...another BFFN

Repeat SHG 6/14-normal / Endometrial Receptivity Array biopsy 7/14-Receptive Uterus

New RE, additional testing reveals elevated NK Cells

FET of 1 day 5 blast (RE recommends transferring 1 due to elevated NK cells) with lovenox, steroids & intralipids in October

 

 

 

Re: How are you?

  • @Km672 How are you doing?

    I'm doing ok. Like always I work too much.  Luckily, this weekend I do not have to work at all.  Hooray!! 

    I emailed my RE Sunday night to she would/could pass a message onto the donor that I became emotionally invested in, hoping I can talk her into reconsidering her decision and donate her eggs again.  My RE said she'd pass it on.  I've been patiently awaiting a response.  Despite hitting refresh on my email a million and one times I haven't heard anything.


    ::: Married June 2003:::
    TTC #1 since: Aug. 2008
    Me: 34, DOR, MTHFR-A1298C (heterozygous), decreased blood flow to uterus, Mild Endo
    DH: 38, Balanced translocation 5&10, unexplained MFI, normal SA and SCSA
    Tx History: IUI 1&2= BFN
    IVF# 1 W/ICSI= BFN
    IVF# 2: cancelled d/t no response
    IVF# 3= 1 egg retrieved=immature/not viable
    IVF# 4= c/p
    ***CCRM ODWU***
    Found DHs BT and Me-decreased blood flow to uterus
    Recommended DE IVF w/PGD, incorporate electro-acupuncture. Decided to cycle locally
    ***New RE***
    DE IVF# 1(cycle #6) w/pgd, (freeze all): 30R, 23M, 15F, slow/poor embryo development, 4 biopsied, 1 Normal "Norm"; DE IVF w/PGD, incorporate electro-acupuncture. 
    IVF# 6: (OE/DS) cancelled
    IVF# 7: (OE/DS) 1R, 1M, 1F, arrested day 5
    Plan-DE IVF# 2 (cycle #8): DE/DS in May 2015


    http://icanhazbabyz.blogspot.com/
    imageimage image 
  • ((hugs)) @mm29

    I found out yesterday that I've lost my IVIG coverage, which is just fantastic since my NKC has increased with each cycle and prednisone alone isn't doing much anymore.  When I tested a week after IVIG, an intralipid infusion, and 20mg of prednisone they were at 28 (target is under 15).  I have 2 doses of IVIG left right now and I am pretty sure they will want me to do 2 infusions before transfer.  That means after my next attempt at FET, I will be OOP for IVIG.  I am pissed that my HR didn't tell us that our insurance this year would include preauthorization when our previous plan didn't.  I could have put in a refill before the end of the year and at least had 4 more doses to work with.  There was no way for me to see this coming since our nothing changed with our insurance (even the plan numbers stayed the same) and the only change they told us about was a change in copay/deductible/coinsurance. 

    Non infertility related, I am busy with work as usual this time of year. 

    imageimageimageimageimage

     

    image

    TTC #1 since August 2011

    My Blog

    September 2012: Start IF testing

    DH (32): SA is ok, slightly low morph, normal SCSA  Me (32): Slightly low progesterone, hostile CM, carrier for CF, Moderately high NKC, High TNFa, heterozyogous mutated Factor XIII, and +APA

    October 2012-May 2014: 4 failed IUIs, 3 failed IVFs, and 1 failed FETw/donor embryos

    November 2014: IVF w/ICSI #4 Agonist/Antagonist with EPP and Prednisone, Baby Aspirin, Lovenox, and IVIG for immune issues.  Converted to freeze all due to lining issues.  2 blasts frozen on day 6!

    January 2015: FET #2 Cancelled due to lining issues

    April 2015: FET #2.1


    PAIF/SAIF Welcome!

  • Loading the player...
  • @Km672‌ Any updates on Dr KK?

    @mm29‌ I have everything crossed!

    @Twinkie0612‌ I am so sorry. This is terrible news. Have you heard of or read The Autoimmune Solution by Amy Myers. Even though I don't have an autoimmune diagnosis, I want to throw everything at this next cycle. I might give it a go....

    AFM ****Loss Update**** Beta was still at 32 this week. I keep thinking AF is coming but she never does. I'm 4 weeks passed the d&c, but I am supposed to ovulate first. I don't know. This has been so frustrating on top of everything else. I'm very anxious to get my normal cycle back.
    Me: 34 | He: 40
    TTC since 08/2012
    DX: DOR




  • ((hugs)) @mm29

    I found out yesterday that I've lost my IVIG coverage, which is just fantastic since my NKC has increased with each cycle and prednisone alone isn't doing much anymore.  When I tested a week after IVIG, an intralipid infusion, and 20mg of prednisone they were at 28 (target is under 15).  I have 2 doses of IVIG left right now and I am pretty sure they will want me to do 2 infusions before transfer.  That means after my next attempt at FET, I will be OOP for IVIG.  I am pissed that my HR didn't tell us that our insurance this year would include preauthorization when our previous plan didn't.  I could have put in a refill before the end of the year and at least had 4 more doses to work with.  There was no way for me to see this coming since our nothing changed with our insurance (even the plan numbers stayed the same) and the only change they told us about was a change in copay/deductible/coinsurance. 

    Non infertility related, I am busy with work as usual this time of year. 

    Why don't you just file an appeal?
    6 m/c
    Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
    Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
    1 Clomid/Ovidrel BFN May 2011
    Natural cycle Aug 2011 BFP M/C 4 Weeks
    1 IUI Sept 2011 BFP M/c 7 weeks
    Provera Dec 2011 BFP M/C 3 Weeks
    DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
    IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
    IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
    Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
    Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
    Went to Beer Center- high tnf, low lad, implantation failure
    Nov/Dec 2012 LIT Treatment
    Dec 12 Humira
    Jan 2013 BFP
    Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
    Miracle Born August 2013 Premature

    Yours doesn't have to be a sad story



    image
    image


    Lilypie - (ugiy)


  • @mm29 - I am so sorry to hear about the donor. I hope you have more options to consider soon. So very sorry :(
    I hope you were able to relax and enjoy your weekend.

    @Twinkie0612‌ - ugh!!! I'm so sorry about your insurance. This kind of stuff makes me crazy! That's incredibly frustrating!!

    @luvboston‌'s suggestion could work out for you... Maybe something to consider?

    @ronniesgirl1981‌ - so sorry you're still going through this. I hope things progress and things go back to normal.


    My KK appt is later this month. I haven't really had a period since my failed FET in October. When I saw my new gym in dec, she wasn't concerned. I just don't care to be honest. Fx it doesn't arrive for my appt

    I receive disappointing news at work last week and now I have serious job security issues.
    I was really hoping to throw myself into my work and have a new & positive focus, so I'm pretty upset about this.

    Hang in there ladies- >:D<

    Me (32) DOR, elevated NK Cells/ 2 copies of MTHFR mutation/ MH (35) azoo/high DFI   (TTC#1 since 2009)

    IVFs#1-4: (4/10-2/12) all BFN

    Surprise Bfp (9/11) - c/p

    DS IUI#1-2 (9/12, 10/12) - BFN

    DS IVF: (11/12) - BFN

    DE/DS IVF#1: (10/13) - 2 day 3 embies transferred-BFFN

    FET of 2 day 6 blasts: (12/13) - c/p

    DE/DS IVF #2: (4/14) - 1 day 5 blast transferred...BFFN...again.

    FET 5/14: 1 day 5 hatching blast transferred...another BFFN

    Repeat SHG 6/14-normal / Endometrial Receptivity Array biopsy 7/14-Receptive Uterus

    New RE, additional testing reveals elevated NK Cells

    FET of 1 day 5 blast (RE recommends transferring 1 due to elevated NK cells) with lovenox, steroids & intralipids in October

     

     

     

  • @mm29 Any response from the donor? I am sorry you have had so many setbacks.

    I'm wishing you all the best and think of each of you (and check in) often! I'm bummed to see the board so quiet after all the drama.

    Age: 35 TTC since 2005, MFI & DOR 

    IVF #1 Sep '11 - canceled poor response

     IVF #2 Nov '11  8R/8M/4F 3dt x2 - chemical

    IVF #3 April '12  11R/6M/4F 3dt x2 - m/c

    FET #1 Aug 2012  3dt x2 - BFN

    **new RE**

     IVF #4 Jan '13 BFN 11R/6M/6F 5dt x2 - BFN

     IVF #5 July '13 16R/10M/10F 5dt x2 + 1 frostie

    9dp5dt Beta 1 = 344!! 16dp5dt. Beta 2 = 4822 7wk u/s= 2 heartbeats!

    Twin girls! 3/6/14

     

  • luvboston said:

    ((hugs)) @mm29

    I found out yesterday that I've lost my IVIG coverage, which is just fantastic since my NKC has increased with each cycle and prednisone alone isn't doing much anymore.  When I tested a week after IVIG, an intralipid infusion, and 20mg of prednisone they were at 28 (target is under 15).  I have 2 doses of IVIG left right now and I am pretty sure they will want me to do 2 infusions before transfer.  That means after my next attempt at FET, I will be OOP for IVIG.  I am pissed that my HR didn't tell us that our insurance this year would include preauthorization when our previous plan didn't.  I could have put in a refill before the end of the year and at least had 4 more doses to work with.  There was no way for me to see this coming since our nothing changed with our insurance (even the plan numbers stayed the same) and the only change they told us about was a change in copay/deductible/coinsurance. 

    Non infertility related, I am busy with work as usual this time of year. 

    Why don't you just file an appeal?

    @luvboston I plan on filing an appeal, but the nurse has mentioned that my insurance is one of the worst about covering IVIG.  Also when they submitted my pre authorization, they sent in a bunch of the literature that they would normally send for the appeal trying to expedite the process.  Right now there is some stuff going down at work that might cause a change in insurance, so I am going to wait to file the appeal until I know for certain that my insurance is staying the same.  Dr. KK's office has a charge for letters, so it may cost me $77 for the appeal.  Before spending the money, I'll wait to make sure it's with the right insurance company.

    Even appealing, I may end up with at least some IVIG OOP since it can take awhile to go through the appeal process. 

    I just don't have much hope for the appeal making a difference since my pre-authorization already had to go through Cigna's doctor and was denied.  I've read their requirements for IVIG coverage online and they are super strict and I don't meet them.  It seems like the odds of an appeal making a difference isn't very good. 

    imageimageimageimageimage

     

    image

    TTC #1 since August 2011

    My Blog

    September 2012: Start IF testing

    DH (32): SA is ok, slightly low morph, normal SCSA  Me (32): Slightly low progesterone, hostile CM, carrier for CF, Moderately high NKC, High TNFa, heterozyogous mutated Factor XIII, and +APA

    October 2012-May 2014: 4 failed IUIs, 3 failed IVFs, and 1 failed FETw/donor embryos

    November 2014: IVF w/ICSI #4 Agonist/Antagonist with EPP and Prednisone, Baby Aspirin, Lovenox, and IVIG for immune issues.  Converted to freeze all due to lining issues.  2 blasts frozen on day 6!

    January 2015: FET #2 Cancelled due to lining issues

    April 2015: FET #2.1


    PAIF/SAIF Welcome!

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