Late Term and Child Loss

Loss- prenatal onset GBS

Hi everyone,
I lost my daughter Mara just over a month ago. My water broke at 24 weeks 2 days, and I delivered her by c-section that same day. Based on her size doctors think she was more like 25 weeks.She lived for 2 days at the NICU at another hospital (my hospital could only take babies 28 + weeks).  My insurance would not cover the cost of my ambulance for transfer to the new hospital, but I was discharged a day early so I could go see her where she was. She passed away that same night so I had a few precious hours with her.

The day before my water broke we noticed that she wasn't moving nearly as much as normal, but my monthly appointment was scheduled for the next day so I was not too concerned. After delivery my placenta tested positive for Group B Strep, and she was very sick (infected) when she was born. The doctors feel it is most likely that the GBS caused the preterm labor (as opposed to the preterm labor enabling the GBS to go up and into the womb). Apparently very early in my pregnancy they did a vaginal culture for GBS and I tested at very high levels.  What frustrates me the most is that I wasn't told that I was GBS positive, and that even though my ob/gyn practice tests at the beginning of pregnancy, they only treat GBS at the time of delivery. Everyone tells me that the chances of the bacteria infecting the womb are so small, and this happens so infrequently, so my case is seen as an unlucky, uncommon occurrence and not something that was preventable. It seems like most doctors, as well as most of the research, focuses on early onset and late onset GBS. These of course are also devastating,  but makes me nervous for my next pregnancy and for other women that GBS is not taken considered serious during pregnancy.

My doctor told me that for a future pregnancy they may consult with MFM and would likely test throughout my pregnancy for GBS and treat with penicillin due to my history. I'm really curious to hear from any other women who have experienced loss due to prenatal onset GBS. What were your experiences like with the doctors? If you have had any pregnancies since, did your doctors treat your pregnancy differently in terms of the GBS? Thanks in advance for your feedback and support.

Re: Loss- prenatal onset GBS

  • I am so sorry for the loss of your daughter Mara. I don't have experience with GBS. But we are here for you when you need us.
  • I am so sorry for your loss of Mara. I have no experience with GBS, but know that we are here whenever you need us.
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    Lilypie Angel and Memorial tickersLilypie Kids Birthday tickers

    Me: 32 DH: 33  High School Sweethearts  Married 5/28/2005
    DS1 born 6/5/10 at 40 weeks via emergency c-section due to fetal distress and IUGR caused by placental insufficiency
    DS2 born still 8/28/13 at 32 weeks via emergency c-section due to a complete placental abruption - cause unknown
    Baby #3 on the way, EDD 2/29/16.  Originally twins, but we said goodbye to Baby B at 8 weeks.
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  • Greatest sympathies on the loss of your sweet baby girl Mara. I have not experienced GBS but this board and the ladies on it are so super supportive, lean on us when you need to!
    Noah Gabriel due:4/21/15 born sleeping 12/22/14

    Hoping for a Rainbow in 2016
  • I am so sorry for your loss of Mara.  I too have no experience with GBS but I hope you are able to find some comfort from this board if you are ever in need.
    November 2010 - 10.5 week loss  o:) 
    October 2011 - DS (7)  <3 
    July 2014 - Stillborn DD (24 weeks)  o:) 
    August 2015 - DD (3)  <3 
    April 2018 - 5 week loss o:) 

  • *****siggy


    No experience here either, but wanted to say I'm so sorry for your loss. I hope you can find answers!
  • **ticker and pg mentioned**

    I am so sorry for your loss of your sweet baby.  I lost my twins due to an infection (of a different kind).  Like you said, this isn't something that is preventable.  However, I was treated differently for my subsequent pregnancy.  There are a lot of details on my blog, and you can of course message me if you have any questions.  Sending lots of love and strength to you. 
  • ((Hugs)) I'm so sorry for the loss of Mara.

    BFP #1 March 24, 2010; missed m/c May 26, 2010 @ 12w 4d; D&E May 28, 2010

    BFP #2 Oct 20, 2010; My little boy was born on July 5, 2011

    BFP #3 April 30, 2013; Chemical Pg May 5, 2013

    BFP #4 Aug 22, 2013; It's a boy.  Loss discovered at 24 weeks on Jan 15, 2014 (cause CMV virus)    

                                  <3 We love and miss you Timothy <3

    BFP #5 April 6, 2014; missed m/c May 15, 2014 @ 9 weeks; Misoprostol May 15, 2014; D&C May June 3, 2014

  • **siggy
    I am so sorry for the loss of your sweet Mara ((hugs)))

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        My Blog

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    Lilypie Angel and Memorial tickers
    BFP# 1 7/7/12 Beautiful DD born still at 36 weeks 5 days on 3/2/13
    Diagnosed with PCOS in 2005. Started Metformin July 2013

    BFP # 2 8/7/14 EDD 4/22/15
    Please be our rainbow!!

    **All AL Welcome**

  • Thank you all for your support!
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