Any prader Willi mommies here? — The Bump
Special Needs

Any prader Willi mommies here?

mommy06mommy06 member
edited January 2015 in Special Needs
My dd has had difficulties since birth. We still have no diagnosis, however several of her characteristics point to Prader-Willi syndrome. We have seen a geneticist when she was 1 and not again so I know it's time to return. Anyhow, I am just looking for any other moms with something similar. Thanks!
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Re: Any prader Willi mommies here?

  • She had the microarray genetic testing. At the time it was never mentioned that she may have it so we did not specifically test for it. From what I read the microarray is about 75% accurate in diagnosing prader Willi.

    Thanks auntie!
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