April 2015 Moms

Max update 12/7

I'm going to c/p what my husband wrote over the last few days because I'm too lazy to do it myself ;)

From Monday:
Little man had a rough day, they had to move his chest tube a little and he is having a hard time bouncing back. They had to up his oxygen quite a bit and he also had a blood transfusion today. He hasn't had his head ultrasound yet but they are hoping to get it done between 11pm and 7am tonight.

Tuesday:
Mighty Max Update! Max had a bad morning. We got a phone call at 8 AM from the NICU that Max's heart rate went down and they had to call a code on him. They had to give him epinephrine and were doing chest compressions for an hour and they got his heart rate back up. We got here around 9:30 am not knowing what to expect when we walked throuhgh the doors after we scrubbed in. His heart rate is back up and his oxygen is better than this morning too. His lungs are still very premature and the doctor said it could go either way. We are not ready to give up and by the look of Max, he isn't going to give up either. They gave us a room near the NICU for the night, so we will be staying close by.

Later Tuesday:
Max is still the same but we finally heard back about the head ultrasound. He has NO brain bleeds! Nothing at all! It doesn't change anything because of his lungs but at least it's one less thing to worry about.

Tuesday night:
We are spending the night here in {hospital name}. The NICU has a room for parents and we are staying in it tonight. The next 3 days are going to be crucial in the prognosis of Max's future. His oxygen levels decrease dramatically when he is touched (bloodwork, suctioning, even his own movements). We take it one hour at a time now for the next three days. The goal is to keep his oxygen in the 80-90% range without dropping too much.

Wednesday/today:
Max had a good night last night! His oxygen is hovering atount 80-85% (aiming for 85-90%) with 96% oxygen on the oscillator (every percentage down is good) that's down 4% from last night! There is no more pneumothorax (YAY!) but his liver is slightly enlarged throwing his billirubin a bit high. He's moving around a bunch today, yesterday he was quite lethargic. It takes Max about a half hour to recover after being touched or moved so they are going to move him as little as possible today.


I can't remember if I shared the pic of his eyes open but I love it so if you already saw it, too bad :D


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Re: Max update 12/7

  • Hoping for continued improvement for little Max! I'm glad he's doing better today.
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  • Sweet boy! Continued T&Ps for you guys. Did you ever share how many weeks you were? I'm sorry if I missed that.

    I look at him and think "Wow, he's so tiny, but so solid!" I can't believe we all have a little person that size right now <3
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  • So glad to hear! Your little man is a fighter!
  • Aww so sweet!! Still praying!!!!
  • Thank you so much for the update!!! I have been thinking about you guys a lot!! I hope things continue to improve!! Be strong momma, and keep fighting Max!! Hugs!!
                                                                     
         Me : 28 DH : 30
                                    TTC #1 Since 7/2014
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  • I'm so glad he had a good night and that there are no brain bleeds.  Every positive bit of news counts!  Keep fighting Max; we're all rooting for you!!  Thinking of you @Stucas, and your husband and children.  I can't imagine how hard this must be, but you're so strong and I know you'll get through it.
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  • Thanks for updating us. Max is a little fighter. I will be continuing to pray for him and for your family and am so happy he had a good night. Also the picture is amazing. What a beautiful little boy!
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  • So beautiful. Praying for you guys!
  • Thanks so much for the update. The pictures are beyond adorable. I will be praying specifically for those lungs! 
    Married to E on June 5, 2010
    Gave birth to baby boy, I, on March 25, 2012
    Gave birth to baby girl, A, on May 20, 2013
    Baby #3 due April 29, 2015

    Recovering from mitochondrial dysfunction and Addison's/possibly very severe adrenal burn out using food, medicine, and a large amount of garden therapy.
  • Max, keep fighting! You are so small but so strong and you have wonderful parents! Thinking of you guys
  • Thank you for the update. You and him are constantly in my thoughts.
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  • Thinking about your little family and that precious baby! Thanks for the updates!!
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  • Keep fighting little buddy! It's often one step forward and two steps backward. Hang in there stucas and family.
  • Go Max go! 
  • Thanks for sharing this update on Max! Praying for him often. Hugs to you mama!
  • So glad to see that Max is such a fighter! Will keep sending positive thoughts your way!

    TTC #1 since 4/2012
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    BFP on 8/1/14! EDD 4/13/15
    Beta #1 10dp5dt: 438; Beta #2 12dp5dt: 864; Beta #3 16dp5dt: 3,226

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  • Thank you for the update! I am so glad to hear he's improving! T&P's continued!
  • Go, Mighty Max! @stucas I'm so glad that you and your hubby are able to stay right near the NICU. What a relief to be close by.
  • So glad to read this update! Continued prayers as he gets bigger and stronger!!
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  • You keep fighting Max! I'm so happy he had a good night. I hope he continues to improve. Hugs to you on this rollercoaster!
  • Stay strong Max! Your family will remain in my thoughts and prayers.
  • Glad things are starting to look up.  Keep up the good work little guy!
  • Continued prayers for Max and your family! Keep fighting Max!
  • Go max go! What a fighter! I'm so glad he had a good night and I'm praying for many more of them to come. ♡♡♡
  • i pray he gets better soon ..... he is a brave little boy n we all are looking forward to seeing him healthy n happy in your arms.... take care
  • Keep on keepin' on stucas, Max, and family! What a sweet little face he's got! Such a little fighter! Thinking of you all and keeping you in my prayers.
  • Keep fighting Max!
  • Keep on fighting Max!! Continued prayers for you. Thank you for the update!
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  • Go mighty Max! Praying for comfort and strength for you and your husband during this stressful time and praying that Max can keep up the good work. Praying also for the doctors and nurses taking care of him.
  • Go Max!!! Thinking of you and him today
  • Aw he is such a cutie!! I'll continue sending prayers :x
  • Keep fighting Max! Thank you for the update! He is beautiful!!

  • What a strong little man! Keep fighting Max! Good thoughts your way!
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  • Continued prayers and positivity for Mighty Max, you and your family!
  • Keep fighting Max! You are such a strong boy! So happy to hear he had a better night. You and Max are in my thoughts alot. Hope today is an even better day than yesterday.
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  • Keep fighting Max! You are such a strong boy! So happy to hear he had a better night. You and Max are in my thoughts alot. Hope today is an even better day than yesterday.
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  • So good to hear an update, stay strong little Max!! We're all rooting for you!! 
  • Glad to hear he's a little fighter!
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