One of my boys (John) has been diagnosed with a cortisol deficiency. This was discovered when he was 8 days old as he would rarely open his eyes. Our pediatrician sent us to the ER and his blood sugar was found to be 29. After being in the hospital for a week, they tentatively diagnosed him with cortisol deficiency. His body produces cortisol, but at the very low end of normal and it does raise and lower with stress, but not significantly so. He is on oral hydrocortisone three times a day. We are starting to wean him from this and the drs think this is something he might grow out of. Does anyone have any experience with this?