I had the phone conference today with the psychologist that evaluated DS. He said that DS has ASD with global developmental delay. He scored on the high end for social and moderate for repetitive behaviors. He told us we're doing everything right with therapy. The only thing he would add would be ABA. I'm going to look into it and see what exactly our insurance will cover and if there are any centers close (there are a few a little over an hour away). He gave me a list of resources and said to check out the Autism Speaks 100 Day toolkit (already had it downloaded from when Auntie recommended it). I think my husband expected me to be devastated by the diagnosis. When his pedi first started talking about Autism, I didn't take it too well. But I'm pretty okay with it right now. I think the really long wait to get into the clinic helped. Reading books and talking to people that have kids with SN helped a lot, too.
I asked about if we would schedule any follow up appointments with him. He said not as a child, but if as a teenager we notice the symptoms seem like they're gone, then we could schedule a re-evaluation. I don't know why, but I thought we would be seeing him throughout his childhood. Was that the case with you guys?