Today was Charlie's appointment for the ADOS and he was diagnosed with Autism. The psychologist didn't elaborate as to a type/form, but I'm assuming that's a reflection of the new DSM categorization? She said he has a really, really hard time interacting with others and requesting things he needs - almost all of their interactions needed to be prompted heavily. She said that she believes he's very intelligent, but can't process it and get it out, which is what it's always felt like to us when we interact with him. We are heartbroken, yet surprisingly relieved; we can finish worrying and wondering and start doing and helping. The thought has been at the back of our minds for almost 2 years now and its comforting to know we have a direction.
Once the new year hits and everyone gets back to normal work schedules, we'll be building his IEP and scheduling his therapies. The psychologist also strongly suggested we seek out a cognitive behavioral therapist to see him regarding his anxiety and how it relates. Thankfully, we'll be able to apply for state ACCESS to help expand what is available to us.
In the meantime, we're just reminding ourselves that nothing has actually changed - we just have more information.
Thank you to those who have given words of kindness and wisdom as we've gotten this ball rolling. I truly believe the motivation and direction I got from this board is what helped us get from formal request to diagnosis in under 2 months. This board is something incredibly special.
"I wanted you more than you'll ever know, so I sent love to follow wherever you go."
Ginny DX 21-Hydroxylase Deficiency Congenital Adrenal Hyperplasia
Charlie DX Specific Antibody Deficiency & ASD