Update- tests results suck so I guess we are on to next steps

vh2014

So... I got the numbers out of the nurse yesterday.  But this morning they called and I have to go back at 3 so doc can "go over it with me".

The first number (I think prolactin but can't remember) was normal, but FSH was 57.  It was a "mid cycle" FSH because they haven't been able to get my cycle started, but even for the FSH surge that is high (depending on what you read 30 or 40 is top of the midcycle range).  I've been getting positive OPKs the last 2 days so that means my LH has been going over 40 but no temp change so not ovulating. 

Of course the kicker is today I am having a dull pain in my right "ovarian area" and really sore boobs. Mother Nature Sucks. Guess I'll find out at 3 if we are done or next steps.   Reviewing my insurance now but DH and I had decided no IUI or IVF.  I am now rethinking that decision... guess we'll have to see if he does too.

sonpetitlapin

Keep you in my thoughts for positive news today!!

vh2014

The good news is it looks like I have decent insurance so it will cover something it says "For Artificial Insemination and Ovulation Induction, there is a six-cycle limit and for Advance Reproductive Therapy there is a two-cycle limit."  So we'll see.  Trying to stay positive and look for what could be promising. 

Nikolie93

I am so sorry. I hope you get some good news later! 

And that's good about your insurance if it's needed. *hug*

WinoGrrl

Glad your insurance covers something if it's needed- T&Ps that you get some good news later today!!

Davie813

That's great news about the insurance!

I hope you're not too stressed about the rest of it.  I'm not sure how much mid-cycle FSH really means.  I hope your appointment goes well today and they schedule some more standard testing (did they do your AMH?) to give you a better idea of what's going on!

susykat77

Sorry about your results. I hope the doc can give you some clarification today and have a good plan of where to go from here. And yes indeed that is great news about your insurance!

Teenie16

Glad to heard about your insurance. Sorry your results were not what you hoped. I hope your appointment today goes well this afternoon. Sending good vibes your way that the doc has a better explanation/info. Nurses don't often know really how to interpret data properly.

flyliceandcoffee

I don't know much about the numbers, but I'm sorry it's not what you wanted to hear. Glad that insurance is willing to cover things though and I hope your appt turns out better than expected.

wannabmama23

Sorry about the results, but hopefully you will learn a lot more today at 3. I hope that you can come up with a good plan and you and DH are in the same page. Sounds promising from the insurance standpoint at least!

kelley72

I hope your apt. can shed some positive light on the information.  Best wishes!

emsmama15

Good luck this afternoon!  I hope you get some answers and a plan.  And awesome news about your insurance! 

URMySunshine77

I'm sorry that the numbers were not ideal for you. I hope that you get more information today. That's great about your insurance--one less stressor. GL!

hooligans4

Good luck with doctor today.
With your cycle being so long how can they judge the numbers correctly?
I would look more into why your cycle has been so long. Have they checked for cysts and other things that would prevent you from ovulating.
Let us know how it goes later.

vh2014

!!!!!!warning...serious vent. ...and someone else's BFP and possible intentional loss

My doctor is a dumb ass. I have been in tears since I left. He basically said, sorry you are done. When I asked my options he said adoption, he said with this number your eggs are no good. Then I said so I can't carry a child? Them he came up wroth donor eggs. That's how incompetent he is. I told him it wasn't even cd 3...he said he would want them to be 5 if they were and we can't do cycle day 3 because I haven't had a period. I asked about vitex and he didn't know what that was. I asked about acupuncture and he gave me a look. He hasn't done ANYTHING but this one test. No period nothing else. Ummm...I had them on bc...so it isn't like we can't figure something out or at least do a sonogram or something. I am getting another opinion and going to an RE...

Worst part? His walls are thin and I had to listen to the lady in the next room who was pregnant at ama and want contemplating terminating the pregnancy. Why? Because get other 2 kids were clingy and she didn't know if she could take another one, she might have to give up some activities.

Best part? My sister offered to be the donor of i decided to try donor eggs. When she found out she couldn't carry another child (heart) I said I would carry one for her. ..of course I never thought it would be for me to raise and be mine. She's amazing, I didn't even have to ask. First thing out of her mouth.

Anyway. Going to find a doctor who knows how to get a woman pregnant. Should have known by the last appointment this guy was not it. Didn't look at my temps and told me to relax 2 appointmentss ago when he prescribed Provera.

DH is doing as well as he can. Brought flowers and dinner but he well.. he's a guy. Thanks so much for listening. Never thought it would be me in this situation, but it's not over until the last test is run and the RE says no...right?

vballbaby

I'm so sorry. I would definitely get a second opinion. Don't you really need a cd 3 test to get the correct baseline readings?

hooligans4

Run to a new doctor. This guys a douche!
Find a good RE in your area and go from there.
If they find your eggs are no good then look into donor eggs. That's amazing that your sister offered hers.
Take a deep breath and start your leg work to find a new doctor.

MySallyGirl

He sounds like a real idiot. I'm so sorry it was a bad appt!

kindershlitz

Wow.  I hope you find another doctor that can help you.  I feel like dr office walls violate hippa often.   Your sister sounds awesome. Really awesome.

Weird internet hugs coming your way! 

thirtyninetoforty

Don't let him discourage you - he's an idiot!!  I had to go to another doctor to get one who actually cared about getting me pregnant and not about the numbers!

And - I worked with a lady who is 41 and got pregnant and whined the entire time because she didn't want anymore kids.  She m/c at 10 weeks and was ecstatic about it!  I was heartbroken that she was so ignorant!

[Deleted User]

The user and all related content has been deleted.

wvarn

Run don't walk to a new Dr.  So sorry this guy is acting like this.  I have heard so many here sing the praises of RE, so look into that route.  It is awesome that your sis is willing to be a Donor.  I offered to do it for my sister years ago but she never took me up on it. 

vh2014

Thanks everyone.  DH and I had a long talk last night, and I am so grateful.  I thought he was kind of blowing it off because he was talking about all kinds of other things, but I guess he was just waiting until we could sit down and talk.  He said the best thing in the world... "who cares about the insurance and the cost, lets just figure out what's best and not leave anything on the table".  Seems he's up for more than "let's just see what happens" now too. He's furious with my Dr. and thinks he's an incompetant idiot too.  As said above.. what if I have a cyst?  What if there is something else wrong?  He didn't do anything but one test and one number... so... not even going back if I get preganant.  He's supposed to deal with "infertility" per his website, but since there is no mention of being an actual RE that I could find I'm calling BS.   I found what looks like a great one close to my work, which is about an hour away from my house but also close to my sister.  If it comes to that and they let me I might take her up on her offer. 

@holligans4 sprinting to a new doc to get away from this douchebaggery (my sister's favorite term)

@vballbaby I thought CD3 was necessary but I guess they can do mid-cycle just to prove you are not over a certain number if you are having no period at all... but I'm skeptical just because he said it and several things I've read said an anovulatory cycle will give you a high midcycle FSH and you shouldn't diagnose based on that (he didn't even do an ultrasound!)

@kindershlitz yeah...definitely felt like a HIPPA violation and really insensitivity.  I feel like if pediatricians can have sick and well waiting rooms they should be able to keep pregnant and miserable unpregnant patients from sharing a thin wall at the very least. 

@thirtyninetoforty I'd have been fine if he carried about numbers with an s... but one number? Come on.... and my sister made me all out ugly cry. 

@wvarn definitely sprinting.  And even if you never did it, I can promise the offer was an amazing thing. My sister even knew what it entailed with shots and collection and still offered, it really speaks volumes.

As always... I really appreciate all of you... I know some of you have gone through so much.  Yesterday was just a sucker punch for me out of nowhere, but I'll get back up and keep going.  I don't usually get religious in my posts... but a part of me thought this must be part of the plan to make sure I truly appreciate it when it happens, just like my ex makes me truly appreciate DH. I'm going to try and keep that attitude now that I've wallowed and kicked and screamed a bit... we'll see if I can. 

And big creepy internet hugs back to all of you. Thanks. 

kelley72

Best wishes for a quick apt for a new RE !  

Nikolie93

Oh wow, I am so very sorry and so many *hugs* for you. 

I am not sure how I would have handled all of that and the lady in the next room. Ugh. I so hope you can get in with someone else soon that isn't such a douchecanoe. 

I am glad that you were able to talk to YH and he's on board. That makes a huge difference! 

And I got all the feels when I read about your sister  

sonpetitlapin

I am so sorry you had to go through that. I agree run to a new doctor and never look back.I am glad hubby is being very supportive!!  That is wonderful.  And it is great your sister is willing to be a donor!  What type of heart problem does your sister have?

waterbaby318

Jesus, good luck to you. I hope you have better luck with the next RE. It is scary to think we are putting ourselves in others' hand who may not have a frigging clue. 

What a wonderful sister you have! My husband offered to be the sperm donor for my sister and her partner.  People can be so big hearted and loving.

vh2014

*******warning term loss mentioned********

sonpetitlapin she  has a condition that basically gives her congenital heart failure towards the end/ after pregnancy. They found it after her 3rd pregnancy and said that if she had another one it would probably get worse and she might not survive.  She lost her first at term (actually over 40 weeks) and they don't know why but when this condition came up after the 3rd this could have been why as well.  So all risks considered, no more pregnancies. She has gotten better (which is not common, equal chance of staying the same, getting worse, or getting better).

sonpetitlapin

@vh2014 It isn't Peri Partum Cardiomyopathy is it?  (I think I may have asked this before) 

vh2014

sonpetitlapin Yes it is.  I just went back to your intro to see if maybe you knew her/me IRL and see you had it too.  That's a pretty rare diagnosis supposedly.  You are the first person I've "met" that even knew what it was, much less had the diagnosis.  Her ejection fraction was really scary because they didn't find it until after the 3rd pregnancy (I have a very healthy niece and nephew they took as a repeat C a couple weeks early).  She had 3 in 4 years.... but all seems to be well now, though she's still on meds she runs and is otherwise healthy.  

Davie813

I'm glad you're going to find a new doctor--the first one sounds awful!  I can't believe he didn't check your AMH, or do an antral follicle count, or look into the reasons your cycle was so long, or, or, or...before just casually pronouncing you infertile.  I'd like to smack him.

Hugs to your sister and your DH, though.  At least the people who count are being awesome!

sonpetitlapin

@vh2014 I was DX with it after my 3rd was born. I was 23 years old sitting in a hospital room with my 2 week old baby at home, at 10:30 pm the cardiologist working my case walks into my room and tells me I have a heart condition related to pregnancy where it is enlarged and weak, not to have anymore kids and walk out. Meanwhile my mouth is left wide open and in shock.  My EF dropped down to 35%. I recovered within 5 months.  In the almost 12 years since I was DX, more studies have been done and I fit the group of "low risk" for re occurrence.  

I was curious if she had it.  I would definitely consult with a Doctor who specializes in PPCM.  You are in SW VA right?  There is one I think at John Hopkins. I read about this 12 years ago, there were a couple cases where women used a surrogate to have another baby with their eggs.  The surrogates ended up getting PPCM.  Nothing was conclusive and there is more known about it now than 12 years ago. I don't want to scare you, but want you to have all information you can have! 

flyliceandcoffee

ugh, I'm late to the party as usual, but your doctor makes me so mad! I'm glad you're going to find a new one and that your husband is on board with it.

meredithcarole

I am so sorry. I hope you get some good advice from your doctor today.

vh2014

sonpetitlapin the surrogates ended up with it?  That's scary.  Yikes.  My sister is sure her family is complete but if I were to use her eggs I wonder if it would be a risk?

I just made the appointment with the RE! Yay!!!!! It isn't for almost a month on the 15th but woohoo!  That also gives me a month to take Vitex and I contacted the accupuncturist.  Going to keep up my temping and come in prepared.  Could tell by the person I talked to on the phone they weren't impressed with the OBGYN so that actually made me feel better. Funny how just having the appointment made me feel a little better.  Now we get to laugh at my impatience as I wait for it.  

sonpetitlapin

@vh2014 please remember this is research I did 12 years ago.  Nothing was conclusive, just reports.  And I am not a doctor.  That is why I say I would consult with an expert in the field of PPCM.  

That is wonderful about the appointment and I am so happy the office is not impressed with the other doctor.  I am happy your spirits are lifted.

Nikolie93

Yay for getting the RE appointment!

amandayb28

Oh my gosh I am so sorry you have had to face this. New doctor, new plan I hope they do what ever they can to help you. Sending positive vibes to you.

emsmama15

I'm so sorry you had to deal with that douche-y doctor. It doesn't sound like he knows what he's doing. So happy you found a convenient RE and are sprinting away from this guy, your husband is on board, and your sister is awesome! Yay!

peregrinefalconx

vh2014

I know this is a few days late, but...I would have said trust your gut on this one, if you just flat out didn't need to trust your brain! Not conducting a test properly, then giving you a potential misdiagnosis based on an incorrectly administered test should actually be reported. Outrageous.

The good news: you now know this DB sucks and you can move on...

And I am really sorry you had to hear the abortion talk. That is even worse than sitting in the office with all the preggo ladies! I have also received the DE talk (with fine numbers, except my AMH, which both docs said the jury isn't out on it yet). My gut told me that first guy could not possibly be right, so I did a second opinion. Totally different than first guy!! Find new one post haste! GL>

vh2014

peregrinefalconx Thanks.  I have my RE appointment on January 15th.  FX he has better news.  I am coming around to being ok with going to DE quickly if necessary.. but he didn't even suggest that until I pressed. I hadn't thought about reporting him... I have had fantasies of getting KTFU this cycle and sending him a nice note that says... "really? post menopause and not a chance huh? Suck it." LOL  

Honestly though, glad I knew not to listen to him.  Can't imagine if I had been uneducated and just accepted it.  It really did give DH and I the push we needed to have a heart to heart about it all. So now that my cryfest is over I am counting all the good things that are coming out of this (for now.. caution: moods subject to swing on a dime).  I've been occupying my time between now and then searching for peer reviewed research on FSH.