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July 2014 Moms
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Fear of cystic fibrosis

kc061276kc061276 member
in July 2014 Moms
Anyone on here who tested positive as a carrier for CF along with their partner? My husband I did and will be getting CVS next week. We know our child will have a 1:4 or 25% chance of having this disease. I am so scared and have no idea whether I will continue to carry if this happens.
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Re: Fear of cystic fibrosis

  • littlemissmarlalittlemissmarla member
    T's and P's, but I think you meant to post on another BMB.
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  • kc061276kc061276 member
    This is the July board. I am due july 4.
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  • ghostof5lettersghostof5letters member
    Sending all the positive vibes I can. 

    <3 
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    User Banned You have been banned from posting on the forums until 01-11-2165 8:18 AM. The reason for this ban is Inappropriate Links or Signature. Please return to participate in the forums after the ban has elapsed.
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  • [Deleted User][Deleted User] member
    No advice but sending lots of positive thoughts your way. I have a friend from high school with CF who is now in her 30s and doing great. Maybe check out the special needs board and see if anyone there has any experience.
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  • BBColt78BBColt78 member
    My BFF did not know that she and her husband were carriers. 

    She just gave birth to twins and they both have it. Her first (2 years old) does NOT have it.

    You are in a tough, tough position. My suggestion would be to contact your local CF office if your lo tests positive. They will quickly connect you with families. That may help you on your journey.

    All my thoughts your way hon.
    IVF #1- BFP- DD 4/8/2011
    FET #1- 3BB and 3B-B
    Beta #1 (4w0d)- 504
    Beta #2 (4w4d)- 4,577
    Beta #3 (6w0d)- 78,399 HB 115 bpm
    U/S #2 7w0d- HB 155 bpm

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  • jogirls2jogirls2 member
    @kc061276 i wrote back to you on the first thread you started...pls pm me i just went through this myself.

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  • blacktie3blacktie3 member
    edited December 2014
    kc061276 said:
    Anyone on here who tested positive as a carrier for CF along with their partner? My husband I did and will be getting CVS next week. We know our child will have a 1:4 or 25% chance of having this disease. I am so scared and have no idea whether I will continue to carry if this happens.
    Yes we were carriers and yes my son inherited both of our gene mutations for CF. IMO the CVS will tell you that the baby does or doesn't have both genes...it WILL NOT tell you the level of illness (that being said I did not get any invasive test as I felt it was 1/2 information, risky and I wasn't going to terminate due to CF), my baby is asymptomatic and its likely he will always be!  It gets complicated with the different mutations.  Due some research on your specific mutations and go from there!  There are such good treatments now and they are doing loads of research and putting tons of money, and what I mean by tons is over 3 Billion dollars into accelerated research!  Its hard but try to be positive....we always say oh we have 25% of getting it..well there is a 75% (which people bet on less than that) NOT to!!
    <<a href="http://lilypie.com/">Lilypie - Personal pictureLilypie First Birthday tickers>
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  • HelsHels member
    Yes. My DH and I are both carriers of CF. Both of our DDs are carriers as well. I won't go into detail here , but feel free to pm. Also wanted to say that there is a Children with Cystic Fibrosis board on baby center that you may want to check out for more info.


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  • CsltdkCsltdk member
    I'm the wife of someone who has cystic fibrosis and I see how healthy of a life they can live, so yeah I take it pretty personally if someone wants to terminate a perfectly normal pregnancy due to the fact that a baby might have cf. How is that shitty??!
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  • kc061276kc061276 member
    Ok guys. No need to get hostel. This is a board for support. As an FYI I got great news my baby does not have CF or a gene mutation! Best of luck.
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  • jogirls2jogirls2 member
    @kc061276 you made my day...so happy you got these great results!
    feel good hun!

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