T&P please, my son has SMA type 1

absentmindedwife

Ladies I know I have not posted much lately, as it has been so hard for me to see all of the happy healthy babies here. I had been concerned about my sons developmental delays for several months and we were referred to a pediatric neurologist back in November. We received the worst possible phone call today, his blood work came back and he has SMA type 1. I don't know what to do other than just love him as much as I can for however long I get to have him. I can't stop crying. Please pray for me, my family and my special boy. He has so many smiles to give still. While we sometimes worry about baby food, diaper rash, and sleeping-- you never know when your feet will get knocked out from under you and all of the small worries seem like nothing. Girls, hold your babes extra tight tonight, as I will be doing from now until I can't anymore.

THD7580

I'm so sorry.. I cannot even imagine what you are going through.. My heart aches for you all. We are here for anything you need.

Emmagk

I'm so sorry

typeset

Keeping you and your sweet baby in my thoughts.

kendy20

I am so very sorry for the news you and your family have received. All my thoughts and prayers are with you and your LO. Like pp said, if you need anything or just need to talk, feel free to pm me also. So many hugs your way!

SurprisePartySue

All my thoughts and prayers are with you and your family.

flockofmoosen3

I am so sorry. My heart breaks for you and your family. Your son knows you love him.

ho11yday

Oh I am so sorry for you and your family. I'll keep you and your family in my prayers.

LunaBug924

I am so sorry.

Bayberry12

I am so sorry.
We are all here for you. So many positive and uplifting thoughts coming your way.

Helmink0804

I am so very sorry. Your LO and your family are in my never ending thoughts and prayers! If you need anything don't hesitate to PM me!

busterbeagle

So many T&Ps.

gutsysneakers

I am so very sorry. Isaac and your family will be in my thoughts. I hope you have many years with your sweet boy. Like others have said, we are here. Sending creepy internet hugs your way. 

mamagerman

My heart is breaking for you. My prayers are with your family and your sweet little one. 

MerryLove

I am so, so sorry. My thoughts and prayers are with you. I wish I could give you a real hug. Lots of love to you, mama. Whatever you need, whatever support you can get from this board or from me, you have it.

Sam0905

Oh my goodness, I am so sorry. Thoughts and prayers to you, your family, and your sweet baby.

Nikkipal82

I'm so very sorry. I will keep you all in my thoughts and prayers.

limechiffon

I'm so sorry. You and your son will be in my prayers.

mrstengallonhat1

I'm so sorry.  Sending lots of T&Ps your way

Meg&Austin

So sorry you didn't get the news you probably hoped for. Lots of T&P your way.

delatl

I'm so sorry.

biscuitsgirl2007

I'm so sorry to hear this. T&Ps and hugs to your family and little one.

absentmindedwife

Thanks everyone. I appreciate it so very very much! He has a big smile for all of you!!

gutsysneakers

He is darling! I love that smile

momo214

OMG. He is so adorable! I have to admit I didn't know what SMA type 1 was before your post. I googled it and my heart is absolutely breaking for you all. I can't even fathom how hard this news is for your family. I pray for the best for you all!

ns1

I am so sorry.  T & Ps to you and your family.

monkeybutt61612

Oh my god, that's awful. I'm so sorry

Junebug060609

Huge hugs. Huge. I faced a life changing dx with my son, but it's a drop in the bucket compared to what you're facing. Sending up prayers for your sweetie and I'm sending you some strength as you are no doubt reeling.

hbird0723

My heart breaks for you! I am so sorry to hear this. You will all be in my thoughts and prayers!

dp1320

There are no words that can help the pain you feel right now but so many prayers to you and your family during this time.

bridetobe9132013

I am so sorry to hear this news my heart is breaking for you and your family. I am sitting here in tears. Like others have said, we are all here to support you.

ksyknelvr73

I am so, so sorry. My heart is absolutely breaking for you and your precious boy. Please know that we are here for you, in whatever way you may need it. Please keep us posted on him. My prayers are with your family.

Katzalia

So sorry you and your family are faced with this diagnosis. Sending thoughts and prayers your way, and hoping you have good support to keep you going.

mrspopsicle

I'm so sorry. Lots of prayers for you and your sweet boy.

whimsy515

I'm sorry you and your family are going through this. We're thinking of you, and please don't be afraid to reach out to us. You know we're all here for you!

mrsbtobe20122

I'm so very sorry to hear this news. You and Isaac are in my heart.

Miles2Go

I'm so sorry.

KateBee

So many prayers for you and your family. You'll be in my thoughts. 

ArmyMedic7588

I am so sorry to hear the news you received. You and your family are in my thoughts and prayers. So many hugs to you. I know we've never talked but if you ever need anything please don't hesitate to pm me. You have so much support here.

hfooter

I am so sorry Many T&Ps are being sent.

haylo33

He is absolutely beautiful. I'm so sorry. I too didn't know much about it and my heart breaks for you.