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UnmistakeableRuni

I tried to stay away, but guess I'm back, because I need a little more support.

In the weeks I've been gone, I developed sensitivities to nearly all dressings used over my picc line, a yeast rash, and now I'm getting itchy rashes all over my body... I have the rollercoaster weight ride still, and the rollercoaster with my blood pressure, and oh yeah, Contractions up the wazoo now that I'm on medication to keep at bay.

I feel like one of the most high maintenance patients ever, always on the phone with nurses... Always adding medications to my list... And now, the only thing that helps me, I'm losing it because doc is pretty certain my picc line is causing my sensitivity problems.  And we are back to square one with trying oral meds... I know they won't work.  They didn't work before, why would they work now?

Trek3

That sucks Hope that they can find SOMETHING that helps!

luckylady18

Oh no! I'm so sorry to hear this. I really hope that they find a way to help you.

kellyfo14

Sorry to hear that! Must be very frustrating!

honeybeee3

Bummer. Hopefully things get better for you soon!

robsbabygirl08

It sounds like you're having a horrible time. I'm sorry to hear that and hope you can find relief in something.

ShuShubee

That sounds awful. I hope they find something that works.

NatureLovers

This happened to me too. I was getting water filled, itchy blisters on and around my dressings. After some trial and error, what worked was using a hypoallergenic dressing (it has orange borders) vs the regular dressing because the glue on it is super irritating. During dressing changes, we had to discontinue the Chloroprep entirely as I am super allergic to it. Now we do alcohol x2, then a thorough cleanse with Betadine, let it dry, then wipe it off with alcohol swabs x2 again. I've been free of all allergic reactions since. Did they already pull your line?

NatureLovers

P.S. It's not nice to stay away and only come in to gather support when you want/need it. Since you get support, you should stick around and give it as well. It's not nice to only be a taker.

januarymommy2015

Sorry your going through this. Hope you get better soon.

UnmistakeableRuni

Line's been pulled and yes we've tried all sorts of solutions (three different dressings/covers, alcohol only etc), but when my arm looks like this and never gets better.... Enough said...  So now I've basically got a bowl glued to me.

Also thank you for the reminder of why I left.  I needed support and that was the reason I came back, true, that doesn't mean this is the only place I intend to post... Plus, this IS a forum intended for support anyway, so yeah, its not bad to ask for a little support.

NatureLovers

UnmistakeableRuni said:

Line's been pulled and yes we've tried all sorts of solutions (three different dressings/covers, alcohol only etc), but when my arm looks like this and never gets better.... Enough said...  So now I've basically got a bowl glued to me.

Also thank you for the reminder of why I left.  I needed support and that was the reason I came back, true, that doesn't mean this is the only place I intend to post... Plus, this IS a forum intended for support anyway, so yeah, its not bad to ask for a little support.

I don't know what you mean by "reminding me of why I left". You've been treated with nothing but kindness from myself and many others. Yes, this is a place to ask for support. But it's also a place to return the favor, and give that support to others the way it was given to you, not just taking it when it's convenient. Whether you post somewhere else is irrelevant. If that's your (awful and ungrateful) attitude, you probably should do everyone a favor and stay away.

UnmistakeableRuni

My point was, I've never been one to take support when it's 'convenient' as you put it and I've ALWAYS given it... So yes, I'm pissed that you'd say something along the lines of me being otherwise. And yes, a lot of the time people are nice and helpful... but I definitely would not say all I've gotten is niceness and helpfulness... If that were true, I wouldn't have left...  

Now if you don't mind, I'd rather like to avoid the nasties, and remain on topic... Which was hyperemesis support since I no longer have my picc line, and support since I have to live with a bowl glued to my side...

NatureLovers

UnmistakeableRuni said:

My point was, I've never been one to take support when it's 'convenient' as you put it and I've ALWAYS given it... So yes, I'm pissed that you'd say something along the lines of me being otherwise. And yes, a lot of the time people are nice and helpful... but I definitely would not say all I've gotten is niceness and helpfulness... If that were true, I wouldn't have left...  

Now if you don't mind, I'd rather like to avoid the nasties, and remain on topic... Which was hyperemesis support since I no longer have my picc line, and support since I have to live with a bowl glued to my side...

You admitted that you were trying to stay away, and that you only came back because you wanted something. That is not giving support, it's only taking it. I haven't seen you around for awhile. I'd also like to see examples of the alleged unhelpful, non-nice responses you're claiming to have gotten, because I certainly don't remember any, and as a fellow HG sufferer, I'm pretty sure I've read most, if not all of your posts. It is also not the "nasties" to call someone out on less than stellar behavior, and your attitude leaves a lot to be desired. Since you dislike it so much here, and you've received so many alleged not-nice, unhelpful responses to your posts, why are you back? Oh yeah, because you want the support you've been freely given all along. That's my point. You don't stick around, and you only respond to posts that are all about you. You take what you want and then leave, which is crappy of you. HG is not an excuse. I'm suffering too but I manage to return the support that I've been given. You have quite a bit of nerve to attempt to steer the conversation back to requesting more responses and support for yourself. You get what you give.

southernyankeegirl

I am sorry you've had such a rough time of it. It does sound like you have just had some terribly bad luck with this pregnancy, and I hope they can manage your symptoms with oral meds. Or at least that a break from the PICC line will help your skin clear up so you can then get more IV meds later.

All that said, I think NatureLover has been more than fair and kind in how she has directed you to be a more welcome part of the group if you want to continue coming here for support.

You are welcome to post here, and I think most women here probably do feel bad for what you've gone through, but we have several members who have had comparable challenges during their pregnancies and they manage to give support as much as they ask for it. That means reading other people's posts and responding with kind words, like the kind you clearly want to hear today.

It seems 90% of the time you post, it is a new thread (not in the daily "Randoms" or something) to complain about things that (admittedly do) suck in your life. If this happened occasionally, and your other posts were in other threads on other topics or in support of others, you'd be flooded with support. But the truth is you seem to be treating this board as your private diary, posting only when you need to complain and then hoping everyone will rush to support you.

If what you need to get through all this is a diary, that's understandable - they sell the paper kind on Amazon, or you can use WordPress easily. But if what you want is supportive friends, you have to be a friend to others to get friends.

moonfaerie

That really sucks, I hope your doctors can figure out how to make you more comfortable.

BookitBoo

I really hate when people say that TB is a 'support community.' No, it's just a community. AA is a support community. You can't just demand people respond only positively or in the way you want. That's not how it works in ANY relationship. When you build friendships here you will get support, and love, and sometimes even that swift kick in the pants that only friends can deliver.

britb618

yea sorry OP when you start your post by I tried to stay away but now I'm back because I need something....we don't have patience for that. The other ladies are being more eloquent than me so I'll just echo what they said. 

britb618

aw I miss how i met your mother @papapalie

UnmistakeableRuni

I can actually think of FOUR threads where I was attacked just off the top of my head, NOT including this one, and for those of you who seem to think I only started complaining threads/started threads period.... I actually was a faithful poster in Randoms, HDBD, some of the other regular threads... I even started a few threads intended to be helpful for others, two of which apparently were threads that are BAD...  And one of the times I was attacked, was for trying to sympathize but apparently I was what was the word... oh yes ENTITLED.

I was an AVID follower on MF's condition, and NL's, etc... but hey, no... I'm being attacked for coming back to have a little support...

Support comes in many colors: Advice, help, tips, updates, rants, etc...  All of which I've given, taken etc...  I made a return yes, and it was a rant that started me off, because by bloody hell I am scared... I spent my night crying even after the line was pulled out, because that was the only way I was surviving.  I am SOOO sorry you all are offended by the fact I'm here and made this post, but yes... I DO expect people to actually talk about the provided topic.

Why I came back was irrelevant.  I left for four weeks because I got tired of drama, being attacked for everything I say/post... Only reason I said anything about the support at all was because I had been gone... I figured some people would desire more of an explanation... guess I was wrong.

BookitBoo

Your expectations are probably why you feel attacked. I can honestly say I don't remember one instance of anyone attacking you so I seriously side eye all these accusations in spite of the super serious capitalized words and ellipses.

You can post as much as you like but you can't dictate the responses you get, and when you called everyone big old meanies what kind of welcoming homecoming did you expect? Seriously? We weren't good enough support enough for you before you ragequit. I'm certainly not interested in trying again.

I'm sorry you're scared. I just don't think I can provide the support you need because you've made it apparent that nobody on here could in the past.

If you want to provide an itinerary and bulleted schedule for how J15 should comfort you so you don't feel attacked, and so that what you need lives up to your expectations, I'm sure that there are some newer members who wouldn't mind helping you out in that regard.

NatureLovers

@UnmistakeableRuni‌ no one could be this dense, so I'm going to say you're being willfully obtuse in pretending not to understand the point that is being made here. Stop pretending to be misunderstood and mistreated. I didn't see it, but if you got flamed on this board, it's because you had it coming. So to come back now and say "I was trying to stay away because you're all a bunch of big old meanies who were nasty to me for no reason, but now I want something from you, so you better give me what I want and don't mention my past behavior." Yeah, that's not how it works. I can't believe you don't understand that.

BookitBoo

UnmistakeableRuni said:

I tried to stay away, but guess I'm back, because I need a little more support.

In the weeks I've been gone, I developed sensitivities to nearly all dressings used over my picc line, a yeast rash, and now I'm getting itchy rashes all over my body... I have the rollercoaster weight ride still, and the rollercoaster with my blood pressure, and oh yeah, Contractions up the wazoo now that I'm on medication to keep at bay.

I feel like one of the most high maintenance patients ever, always on the phone with nurses... Always adding medications to my list... And now, the only thing that helps me, I'm losing it because doc is pretty certain my picc line is causing my sensitivity problems.  And we are back to square one with trying oral meds... I know they won't work.  They didn't work before, why would they work now?

QFP

UnmistakeableRuni

Look, I'll apologize for my ONE sentence that seems to inflamed everyone.  It was not intended to cause offense, It was intended as an explanation for why I had been gone... I'm no wordsmith as much as I've tried over the years to learn to say exactly what I mean.  My brain doesn't work that way... I've said this before, but apparently it means nothing.

Also last I checked I never called anyone meanies... I don't name call.  I said I wanted to avoid the nasties and get back to the original point of the thread... But hey.  We''l just go with, I'm dense and mistakenly believe I'm being mistreated.  Sorry people you don't remember attacking to me, but hey, whatever.

peggels24

Is nasties better than meanies?

UnmistakeableRuni

I was referring to the comments.  Not the people.

BookitBoo

It has to be really tiring playing the victim all the time.

southernyankeegirl

UnmistakeableRuni

@ExcitedMama2 I've been back a single day (not even), and I'm trying to catch up between throwing up.  I only just got through reading about MF when I was notified I've got more inflamations...  As for why I didn't stay away?  Because I'm a bloody optimist and like to think people aren't inherently accusatory and judgemental. 

And yes, my account history was erased it seems, when I asked for my account to be deleted.  Not sure how it works, I thought if my account was deleted It wouldn't let me log in but hey... I came to the board and since Chrome auto logs me in to sites I've used (well when I tell it) I was able to log in on my old account.  Whatever... but I

ETA:  I have no idea what I was going to finish that last sentence with... 

NatureLovers

UnmistakeableRuni said:

Look, I'll apologize for my ONE sentence that seems to inflamed everyone.  It was not intended to cause offense, It was intended as an explanation for why I had been gone... I'm no wordsmith as much as I've tried over the years to learn to say exactly what I mean.  My brain doesn't work that way... I've said this before, but apparently it means nothing.

Also last I checked I never called anyone meanies... I don't name call.  I said I wanted to avoid the nasties and get back to the original point of the thread... But hey.  We''l just go with, I'm dense and mistakenly believe I'm being mistreated.  Sorry people you don't remember attacking to me, but hey, whatever.

"Look, I'll issue a sorrynotsorry if that will shut you people up and deflect from my past behavior. But let's make this clear, any past (and current) animosity is your fault for not understanding that I'm not capable of communicating effectively, and it is your job to read between the lines and decipher what I mean, and to give me the benefit of the doubt at all times."

Yeah, no.