High Risk of Cleft Lip and Palate

kaceelynn1

I have to take the anti-seizure medicine lamictal (lamotrigine) and that puts me at great risk for cleft lip and palate. I am almost six weeks pregnant and this is the time it would happen. I am feeling a lot of guilt already and don't even know if my baby will have it. The risk is ten times the normal rate so it is very likely. I don't know how to keep from thinking about it for the next 34 weeks. Anyone else struggling with this?

Campow83

I don't know if this will bring you any comfort but I am 33 and was born with cleft lip/palette. I know we all want perfect pregnancies but just wanted to let you know it will be ok. I had 3 surgeries up until I was 5 to correct it and I am truly blessed to have had great doctors, you wouldn't even know, and that was back in the 80's. I'm sure doctors are way better now Like I said, it's not going to take away your guilt but maybe to speak with someone who personally has it. Please let me know if you have any questions about my personal experience growing up with it and good luck to you and your beautiful baby!

luvboston

I have to take prednisone each pg to stay pg, there is a risk of cleft palette. I don't feel bad at all its what has to be done and a cleft palette is very fixable. Take it easy on yourself it's not like your taking illegal drugs or things you don't need. If the worst thing that happens is a cleft palette you should feel lucky, I have a sister with multiple birth defects.

kaceelynn1

Thank you for your responses. I did more research and feel better. I hope all goes well for you both.

cwiceangel

I'm on the same meds. If you've been taking your prenatals... Hopefully the drs have told you to double the recommended amount of folic acid, the rate decreases. I'm at 20 weeks and still take double the prenatals most would. Now I'm more worried about neural tube issues. Well see on Monday how that's looking.