February 2015 Moms
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Good Thoughts for my Friend (semi-long) *UPDATED IN COMMENTS*

T&P's just sounds too cheesy.

I have a friend whose little girl was born with gastrochisis.  She had an extremely severe case, and they weren't very confident that she would live, or even eat during her lifetime if she did (at 24 weeks, after they discovered the severity, the doctor recommended termination).  Well, her daughter has beaten the odds and is surviving.  Her and her mother are both warriors.  Baby D is still vomiting or poopsplosioning two to three times a night because she just doesn't digest or retain food well.  I'm not sure how her mother does it; she is truly an amazing person, and still tries to see the best in everything.... all while wrangling FOUR other children and a new business.

Baby D is still receiving the majority of her nutrients through TPN, and routinely goes for additional special intraveinous nutrients at the hospital to keep her vitamins and minerals up.  She's also been in multiple times for infections, and once for sepsis.  Her poor little immune system.

Tomorrow, she will be in surgery (again) for the STEP procedure.  They're basically going to disconnect her digestive system (again), and "sew" her bowel in a zig-zag in order to bring down the circumference and increase the length to give her better absorption from the food she takes in.  Then she'll have to stay in hospital for a few months while her digestive system heals, and will have to have another surgery to reconnect everything after the fact.

I am in tears.  They're such amazing people.  Baby D is only 18 months old, and has to be in surgery again, twice.  I couldn't imagine having to take my baby in for this kind of surgery... and then to have to deny her food for such a long period of time while her body heals.  I am truly heartbroken for them, but hope that the longterm gain is worth the pain of these surgeries.

If you can spare some good thoughts, or some strong prayers if you're the praying type, it would be much appreciated.  I can't express how much Baby D and her mom mean to me, even though we live far away from each other these days.  Surgery is scheduled for first thing tomorrow morning.  [-O<

(Edited because I x-posted and mentioned a friend from another BMB when I didn't mean to)

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Re: Good Thoughts for my Friend (semi-long) *UPDATED IN COMMENTS*

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    This is so heart breaking, my thoughts are with her and her family

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    Sending positive thought her way!
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    Definitely lots o thoughts and positivity heading their way. I couldn't imagine having to go through that with my LO. It takes VERY special and strong people to be able to go through all of that while still maintaining sanity and a smile. Much respect to her and her family. She's lucky to have a friend like you who cares so much! <3

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    Many, many good thoughts and vibes for Baby D and her family.
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    Thoughts, prayers, positivity and love to them.
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    Your friend and baby D sound like some amazing warriors!!! I will send good thoughts their way!!

      ~~~Big brother 11.29.05 & Little Brother 6.18.09~~~  
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    T&P

    Married to Lee since 9/2/2000

    Momma to Hais November 2002 and Carter April 2010 (with use of fertility treatments)

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    Sending good vibes their way! Based on how that story started I thought baby d was only a few weeks or months old. She's one lucky little girl to have a mother who fights so hard for her and has done so much to keep her strong! They deserve their happy ending!
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    Poor thing! Will send continuous healing thoughts to them!!


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    Where are they doing their doctoring? 
    They're at the big hospital in Calgary.  Apparently, if you have gastrochisis, the two places in Canada you want to be are Calgary and Toronto, so they were lucky that the town they live in is only 4 hours away.

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    I'll be praying for them!
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    Thoughts and prayers for a successful surgery and speedy recovery!
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    Talk about strength and resilience! Praying for your friend and her family.
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    Where are they doing their doctoring? 
    They're at the big hospital in Calgary.  Apparently, if you have gastrochisis, the two places in Canada you want to be are Calgary and Toronto, so they were lucky that the town they live in is only 4 hours away.
    What are they going to do while she is in the hospital recovering from the surgery? Do you have the equivalent a Ronald McDonald's House in Canada? Has your group of friends put together a hospital survival package for them? 
    Yes, she lived in RMDH for eight months after Baby D was born, and I think she has plans to stay there again while she recovers from this surgery, although, realistically I think she spends 95% of her time sleeping on the bench in the hospital room.

    We still have many friends in Calgary (we both went to university there), so we have a group of friends that help out and visit with her almost every day.

    Do you have any recommendations for something that might be a nice surprise while she's there?  I'm sure she's well organized for essentials and packed for a long stay, but sometimes it's nice just to receive something unexpected....

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    Wow what a little fighter she is. Definitely will keep them in my thoughts and prayers l. Hopefully this is the final step on the road to recovery.
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    Thoughts and prayers!!
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    How heartbreaking. Sending many positive thoughts to your friend and baby.

    ME:46 MH:44 DE IVF 2014
    Met with RE 4/11. 2 IUI's BFN. DE best option. Switched clinics to do "shared" program. Had to retake all tests and a mamm that put me behind and then on a DE waiting list for 12 months. Picked a donor!! (10/13/13) Got matched. Estimated transfer in December. After 2.5 years of patiently waiting I will finally cycle....can hardly believe it. DE cycle got cancelled. One of her tests came back positive.  Waiting for another donor. Donor picked!! (1/18/14)

    DE IVF #1 (4/26) BFN  DE FET #1 (6/4) BFP! Beta 1=339 Beta 2=852 Beta 3=9957 EDD 2/22/15!!


     

     

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    Oh gosh, lots of Ts and Ps! Please keep us updated!!!!

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    What an amazing example of strength. You, your friend and Baby D will be in my family's prayers.
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    Thoughts and prayers for baby d!
    -------------------------------
    Sarah, 35 bumping from NE Ohio
    Married my love 4/22/2006
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    All the good thoughts to your friend!
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    Love and light and good vibes to your friend and her family.
    BFP #1: It's a GIRL! DD born October, 2012
    BFP #2: m/c at 7w, February, 2014
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    T&P headed to her and her family! Stay positive @thegoodpotato‌, she is lucky to have you.
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    This breaks my heart. Tons of T&P for them. It sounds like she is one strong little girl.

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    Wow! What a strong family to stay sane through all of that. I am so heartbroken baby D has to have another surgery but hope it goes well. Good thoughts and vibes their way.
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    Thoughts and healthy recovery for your friend's baby. The mom sounds like a wonderful and positive woman.
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    Wow, what a strong and brave mama and baby. My thoughts and prayer will be with them tomorrow. Hope every goes well and she has a smooth and fast recovery. She has already beaten many odds!
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    I truly am at a loss. My words seem so feeble. My thoughts are just burdened with the enormity of the weight this mother and father are bearing. Please know that they will be earnestly prayed for tonight.... And since I've been having pregnancy insomnia, it may just be an all-night-prayer kinda thing. Thank you for sharing her story. What a privilege it is to be able to pray for them. Please keep us updated on baby D.
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    Thoughts and prayers to you all. Baby D sounds like a little warrior. Fx for the best outcome
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    I hope the surgery went well and that Baby D is comfortable and that her mom, dad, and siblings are remaining positive ( although, it sounds like they have always been).
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    That's gotta be so rough. My T&Ps go out to them.

     

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    jennjilljojennjilljo member
    edited October 2014
    Love tit because I want to know when she's ok and recovering after her long surgery.
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    Ugh, this just hits me right in the feels, stay strong little fighter (and Momma/Family)

    all the positive thoughts coming her way.
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    so sad and devastating for the whole family - sending T&Ps for sure!!

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    Oh my gosh - that is heartbreaking. :(  It sounds like you're a great support for your friend.  Hopefully Baby D's surgery goes well and she won't need more in the future.  Lots of positive thoughts for a good outcome.
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    SUCH happy news!
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    Great news!!
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    YES!!!!!!!!!!!!!!!!!!!!!!!! I love this update!!!!!! So happy to hear it!

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    TTC 10+ | Stage 4 Endometriosis

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