AW/SS Tracheostomy today

littlecookiee

Sweet baby Landry had a tracheostomy today. It was everything we fought against for 5 months, but when it came down to development and her best interests, we did what was best for her. Lots and lots of prayers for our family are appreciated. We love being apart of this wonderful community that makes us feel normal. Posting a birth story was just too hard for me and I know asking for prayers and well wishes are selfish but, I'm at a selfish state. Thank you to all of you who have been so supportive of my random posts.

Nichole8787

Hugs and prayers for you and your family

Katieryan13

Sending big hugs your way!

marsalisails

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shortstack930

Thoughts and prayers to you and your family!

littlemissmarla

Sending lots of thoughts and prayers for your sweet little one!

Prncesta

Prayers for your family and baby Landry!

ashlya1

Thoughts and prayers to your little one and the family. Big hugs too!

LenaLove

No one should feel selfish asking for support when they need it! Sending thoughts and prayers to you and your sweet baby!

hgtvmom

Prayers for you and your sweet baby!

honeybee434

Thinking of you and your family! Hope this new stage for you goes more smoothly than you think it will!

littlecookiee

RLBregg said:

Don't feel badly for needing support.  Best wishes to you and yours.  Teach her to be proud and rock it like a star!  

You hit the nail on the head. It's hard for us to see a trach as a good thing, but you're absolutely right. I don't ever want her to be ashamed or feel different. I want her to be proud of how hard she's fought to stay alive.

middleschoolmommy

Praying for you and baby girl ♡

BBColt78

Lots of thoughts her way! Hugs to you momma!

jcartz

Huge hugs and many prayers!

kenziebug22

CParker011 said:

RLBregg said:

Don't feel badly for needing support.  Best wishes to you and yours.  Teach her to be proud and rock it like a star!  

You hit the nail on the head. It's hard for us to see a trach as a good thing, but you're absolutely right. I don't ever want her to be ashamed or feel different. I want her to be proud of how hard she's fought to stay alive.

I didnt have this procedure but when i was six months old i had feeding tubes surgically placed directly into my stomach and one in my intestine. I also fought for years to live and had the tubes for years but i never felt weird or different or insecure about them. I carried my back pack that held my bag and you could see my tubes sticking out from my shirt. Because i never ate by mouth it led to other problems with speech and communication and some other things, but this was my normal and I fought it. I grew up not knowing any better and it never phased me, it still doesnt. My parents were a huge help in this as they treated me like a normal kid and didnt favor me just because of my condition.

I am now left with giant holes (the scars) and i never think twice about it.the teenage years were a little rough but more in my own head than anything and that went away quick, i realized that my tubes kept me alive and my scars are just apart of me and make me different but in a good way.

You will have your good and bad days and so will she but you will both get through this and in the end she is perfect the way she is. Just because she needed a little help to live (as did i) doesnt make her any less, if anything it makes her extra special. Let her know what a fighter she is and don't worry about her feeling insecure. Like i said she may have her times when shes older but it will all blow over fast and easy and ahe will probably come out of it stronger and loving her differences.

Keeping your perfect little girl and your whole family in my thoughts and prayers.

cookiemomma14

That is a difficult situation but it just shows how much of a fighter she and her family are, and how much she is loved! Hugs to you for doing what you need to do, even if it is hard. Thinking of you and that things continue to improve.

reils500

I hope the procedure went well! Thinking of you and your baby girl

littlecookiee

@kenziebug22‌ Thank you for sharing your beautiful story. It made me cry. You're right. She is perfect. We will go through hard times and we will make it through just like we are now. Our prayers are that we only have the trach for a few years, at most. I can't wait to tell her stories about how feisty she was when she was itty bitty.

I will hold your story close to my heart.

kenziebug22

@CParker011‌ you're very welcome, just know you made the right choice for your little fighter. If you ever want to talk or need to vent feel free to pm me. I know how hospitals, procedures, and everything that comes with it can be.

nolemomma14

Thoughts and prayers for your baby girl and family. She will always be perfect no matter what!

littlecookiee

MSUDucks said:

Don't you apologize to us for wanting well wishes for your sweet baby at a time where she needs them. You both are in my prayers and I hope that her trach allows her to do much better. Big hugs to you momma. This is hard stuff. Post any requests for positive vibes whenever you need them!!

We can't wait to do things! Like sitting up and tummy time. Or mouth kisses and holding her. All the things y'all have experienced for months! We met a trach baby today who is working on sitting up and he is such a happy boy. We can't wait for her first real smile!

abundancenow

Hope the procedure gives you some of the positive results you're hoping for. We all deserve support , don't apologize, being a mom is hard work. It sounds like you're dealing with specific challenges, and I hope things ease up and you can celebrate your daughter's advances with us. Sending positive thoughts and prayers. Best wishes to your family!

abrazz

Sending prayers for you and Landry.