Trouble TTC

Sort of lost, sorry for sucking at this so badly

I know that I am not on here nearly as often as I should be or near as much as I want to be. It's pretty hard for me to get on a computer my husband uses ours for work and school, and I have frequent issues with the app on my phone. I was able to sneak the laptop for a bit tonight I wanted to get some research done. I finally had my RE visit today. It was a hot mess to say the least. I am sure there is some lunar cycle or aligning of stars, a lot of people I have talked to today are having a terrible day too! The doctor was amazing though, he was nice and ran tests and did a vaginal ultra sound on the spot. He found a pretty large cyst and wanted me to go into surgery with in the next two weeks. I pretty much begged him to put it at the end of those two weeks, that way i can have two more paychecks saved up just to be safe. I have some Thyroid issues he is concerned over and he is consulting with an other surgeon and the anesthesiologist to decide if this is a high risk surgery, if so how high of a risk. Thyroid has my resting heart rate stupid high 100-120 and he is worried about my blood pressure dropping. 

I don't know how i am suppose to feel? I am trying to get a hold of my therapist and get an earlier apt with her as now i have to cancel our original one that was on the 2nd. Am I selfish for wanting to get in and see her? I know i'm not any more important than any of the other she sees. Has any one else ever had this sort of surgery before? I've had surgery on my lungs i'm not worried about the pain, just honestly the recovery time? Do these cysts come back? They said my right ovary looks amazing lots of follicles. I'm worried my left one is ruined, or if it comes back before we can have a child it will mess up the right side. I blanked on ALL of these questions, truly i didn't think that first apt was going to be so detailed and I really didn't think i would have been leaving that day with a surgery date. The next time i see him is for my pre-opp and thats the day before the surgery. I'm worried i won't be able to get all the answers i need. Should i ask other questions? I think I am still a little dumb founded. I was almost praying i would just leave there with some sort of hormone therapy. 

You ladies on here are amazing. I am sorry for being all over the place in this post. I have no idea where to turn or who else to talk to, and i have no family for thousands of miles. I really don't want to stress them out, and have them thinking they need to come up and help. They don't have the money for that kind of thing. Any help is more than appreciate. I am honestly making more of an effort to be on here. I do want to be involved with this board this is the only support system i have. TIA
Endometriosis Confirmed 
2 Large "Chocolate Cyst" Found
Both Ovaries 
Post op as of 10-02-14 BFN 

Re: Sort of lost, sorry for sucking at this so badly

  • lemonliz said:
    I just had a laparoscopy (I think that's what you mean when you refer to surgery).  They removed an endometrioma (a cyst caused by endometriosis), fixed a tube, and burned some endo out.  If it's laparoscopic, it's not a day at the park but the recovery time was minimal.  I was up and around in 3 days (3 weeks before I felt 100% my old self).  I also have thyroid issues and had zero issues during surgery.  My only issue was nausea from anesthesia but the recovery nurses are awesome about reigning that in.  If it's laparotomy, on the other hand,  I can't help you there.  That kind is more invasive.  Also for what it's worth, I have no idea why it would be a high risk surgery.  Thyroid problems are pretty common.    
    Cysts are also pretty common and usually they're nothing really to worry about.  Sometimes they go away on their own.  I've had several that did.  They come and go.  Some larger cysts can rupture which is, I'm guessing, why your doctor is rushing to do this.  When they rupture they can cause a good deal of pain.  Some people are more prone to develop cysts.  Try not to stress out about it too much.  And they no longer try to remove the ovary with the cyst when they go in so I wouldn't worry about that either.  A good surgeon will try to preserve your fertility with any surgical treatment.    

    It's a golf ball sized "Chocolate" cyst or bleeding cyst? The way he explained it was pretty gross, just a build up of blood in that cyst. The cyst is pushing my ovary down and has it stuck to the out side of my uterine wall. The way he explained the surgery was about three or four small holes around my lower abdomen, and on larger one through the belly button. I am not sure if thats the same thing you had? I am new to all this. I tried googling some stuff but it's a lot to take in. I can say i never REALLY even knew what endometriosis was. I feel pretty uneducated at the moment. That sound like a pretty good recovering time I think. Would you think full 7 days before work would be alright? (I hate not being at work we only have three employees working a pretty busy flower shop. That would leave only two ppl to run the store while I am out so either no one would get a day off, or if someone gets a day off that leave the other person by them selves all day and it's really to do. I feel like crap. I have no clue how I am even going to tell my boss… I don't' know how to tell family should i even tell them? I feel like I can't stop apologizing. I am sorry for all these questions. I feel like talking to someone who has actually been there is much better than going to Dr Google. 
    Endometriosis Confirmed 
    2 Large "Chocolate Cyst" Found
    Both Ovaries 
    Post op as of 10-02-14 BFN 
  • That is EVERYTHING i needed to hear that i forgot to ask the RE, thank you SO much. The surgery it self doesn't bother me I have had plenty on my lungs and they were perfumed the same way which makes me feel pretty safe about it. I also love the face the dr I saw today will be in the surgery as well. Like i said I'm just worried bout coming back from that procedure. And if these types come back. I know cysts come and go on their own I just don't' want to have to do this again. 
    Endometriosis Confirmed 
    2 Large "Chocolate Cyst" Found
    Both Ovaries 
    Post op as of 10-02-14 BFN 
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  • I'm sorry for the stressful news you've received. :( Glad to hear PPs info, that is so encouraging. I'm glad they're taking care of it before it can rupture.
    January 3T Siggy Challenge - New Year's Resolutions
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    Me (29), DH (30) TTC actively 54 55+ cycles | All BFNs
    MFI (low everything) | Endo Stage 1 & Stenotic Cervix (treated) | PCO
    Married - July 2008 | Started TTC - Jan 2009RE Visit #1 - Mar 2014 
    IUI #1 ICI #1 - June | IUI #1.1 Laparoscopy - Aug
    IUIs #1.2, 2, 3 - Sept, Oct, Nov (Letrozole) - BFNs 
    IUI #4 - Dec (Bravelle) | IUI #5 - Dec/Jan (Bravelle) - 5 follies + TI - BFNs
    IUI #5.1 - Jan (Bravelle) Cancelled 
    Planning to start IVF in March!
    ***All Welcome***
  • Thank so much, you guys are awesome. I will be calling my therapist when her office opens =] 
    Endometriosis Confirmed 
    2 Large "Chocolate Cyst" Found
    Both Ovaries 
    Post op as of 10-02-14 BFN 
  • I don't have any advice on the surgery, but I wanted to stop by to wish you luck. You sound (justifiably) overwhelmed but I hope the other ladies' input helped ease the anxiety.

    I am a therapist-in-training and I can tell you that your therapist would certainly not mind if you called her. You'd be surprised how often clients change up their appointment times, even at the last minute. You'd also be surprised how many clients come to their therapists for help with pre-surgery anxiety. Many therapists reserve a slot or two of time per week for last minute appointments.

    Me: 28  MH:35

    Married September 2012. TTC since September 2013

    June 2014 - Dx w/ significant PCOS and referred to RE.

    July/August 2014 - Testing complete: Testosterone & AMH very high, FSH slightly high, Vitamin D low, tubes and lining all lovely. DH SA: A+

    Cycle 1 (Nov 2014): 2.5 mg Letrozole/Ovidrel/TI = BFN

    Cycle 2 (Dec 2014): 5 mg Letrozole/Ovidrel/TI - BFN

    Cycle 3 (Jan 2015): 5mg Letrozole/Ovidrel/TI - BFN

    WTF consult scheduled for 1/29

  • I don't have any advice on the surgery, but I wanted to stop by to wish you luck. You sound (justifiably) overwhelmed but I hope the other ladies' input helped ease the anxiety. I am a therapist-in-training and I can tell you that your therapist would certainly not mind if you called her. You'd be surprised how often clients change up their appointment times, even at the last minute. You'd also be surprised how many clients come to their therapists for help with pre-surgery anxiety. Many therapists reserve a slot or two of time per week for last minute appointments.
    I feel a little bit less selfish now, thank you. I appreciate the good luck wishes! 
    Endometriosis Confirmed 
    2 Large "Chocolate Cyst" Found
    Both Ovaries 
    Post op as of 10-02-14 BFN 
  • I have no advice to offer about the surgery, but I just wanted to leave a note of support.  I'm sorry things are so stressful now, but hopefully the surgery will go well.  Good luck, sending you HUGS!!!
    Me: 31 (PCOS) possible right tube issues DH: 36 (SA normal) 
    Started dating in 2006, Married 2012 
    TTC since November 2013 
    First RE visit due to irregular periods: June 2014
    Lap/Hysto to remove polyps, cyst and tube blockage 11/6
    Cycle 1 (Dec. 2014) TI with Clomid, Trigger, & Progesterone CX due to no response
    Impatiently Waiting CD1 to try again with Fermara Back on the bench due to giant cyst,
    who know I'd ovulate on my own after a cancelled cycle and end up with a mega cyst :(
    All Welcome
     
    image
  • I don't have much advice, but I wanted to say good luck!

    As far as telling work, can you just tell them you need a surgery and leave it at that? No one needs to know that it is TTC-related, unless you want them to know. 
    **siggy warning**  **everyone welcome**

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    DS- 11.07.02
    DSS- 6.26.04
    Married- 6.29.13
    TTC Again- Sept. 2013
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Test Results/Diagnosis- HSG & SA totally normal
    DX: 3/2014 Prolactinoma/Hyperprolactinemia- Started cabergoline 2/2014
    5/2014 Possible mild PCOS in addition to hyperprolactinemia??
    7/2014 Adding probable tubal factor to the diagnosis list
    9/2014 And now adding hypothyroid to the list- Started synthroid 9/2014
    Cycles 1-4 - Sept.-March- All Anovulatory 
    IUI #1 March/April-  Clomid 50mg + Clomid 100mg +Trigger + IUI #1 = BFN
     IUI #2 April/May-Clomid 100mg + Clomid 150mg + Trigger + IUI #2 + Endometrin=BFN
    IUI #3- June- Follistim 75iu + Trigger + IUI #3  Benched due to a 40 mm cyst. :-(
    IUI #3- July- Follistim 75iu + Trigger + IUI #3 + Endometrin = BFP! on 7/25/14
    Slowly rising betas - Ectopic suspected on 8/8/14 & confirmed on 8/11/14
    Methotrexate on 8/12/14 -HCG negative on 9/2/14
    IVF #1- November- Antagonist protocol: 11/1: start stims, 200iu of Follistim; 11/12 ER 17R/14M/14F; 11/17 5 day transfer of two blasts, 2 blasts and 2 expanding morulas frozen; 11/22 BFP!! (On FRER at 5dp5dt)
    Betas: 9dp5dt 205, 11dp5dt 497, 14dp5dt 1,709
    u/s at 5w0d- 1 sac; u/s at 6w0d 1 baby with heartbeat, another sac without a heartbeat
    image


  • I have no experience, but wanted to say I am glad that the RE caught it when they did so that you do not have to experience a ruptured cyst. It is one of the most painful things I've experienced in my life.

    I also just wanted to touch on the fact that you said you blanked on questions during your meeting with the RE. You are always welcome to follow up if you need clarification. You don't need to sit around freaking yourself out or trying to find answers on google until your pre-op. Be proactive: grab a pen and paper and give them a call or, alternatively, shoot him an email if one was provided to you. 
    That is a really good idea i didn't even think of that! Thank you so much! 

    Thanks for all the support =] It's really nice to have people know whats going on, i feel a lot less like I am hiding things. 

    And that was exactly what I did. @lebradford Kind of still in that I don't want to announce it to any one phase. Just not comfortable telling people. Which really makes no sense as I type this. I can't tell friends or family but it's easy peasy posting here hahah
    Endometriosis Confirmed 
    2 Large "Chocolate Cyst" Found
    Both Ovaries 
    Post op as of 10-02-14 BFN 
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