Another MSPI Question - long

whoberry

I didn't see the MSPI check in posted for this week so I thought I would try asking here.  After 6 weeks of no dairy or soy in my diet (and about 2 weeks of no nuts) LO was still having problems so we went to the GI specialist.  Shockingly, he told me that LO was allergic to my breast milk, to quit BFing and start feeding him Neocate. We were expecting the doctor to have me continue eliminating foods from my diet, not quit BFing all together.  

The crazy thing is that everything he said made a lot of sense. The doctor said he's found that most kids with MSPI have a parent who is allergic to penicillin (DH is allergic, and I have had some drug reactions) and that the allergy is expressed on the same gene.  I think that was just based on his experience and not on any research.  He also said MSPI tends to get worse with each passing generation.  I don't think MSPI really existed when I was a baby but my mother tells me that I could only handle soy based formula.  The doctor also said that eliminating dairy and soy from your diet only clears up LO's issues in 30-40% of cases.

We are going for a 2nd opinion tomorrow.  We switched LO to neocate until our 2nd opinion and I'm pumping so I don't lose what little supply I have. (LO was getting Alimentum to supplement previously and we tried Nutramigen for a couple days too).

I think the doctor was just trying to dumb it down for us and give us an easy fix- I have never heard of a baby being allergic to breast milk, just what's in the milk. 

Anyone else had this experience?  What did you do? Anyone heard of the penicillin link?  Any of you with MSPI kids have a penicillin allergy?

TIA!

luvbug6315

I'm afraid I'm not much help but as a fellow mspi mama I'm glad you are getting a second opinion. My husband was milk intolerant when he was a kid and he does have a penicillin allergy. Our little one is 18 months and still can't have milk or soy. I've just also started a wheat elimination to see if that helps. I was reading that the protein in wheat is very similar to the one in milk and since we still have issues, thought I'd try it out. I'm only on day three but have seen improvement already.