Pregnant after a Loss

amniotic band

I'm having a very bad day. Went for my 20 week appt. first the sono tech tells me everything is perfect. I'm thrilled! Then I see the dr. Tells me I have an amniotic band and that it's very rare. That its not touching the baby now. Tells me I have to have a sono by a specialist to look into it bc he's only seen it 5 times. But tells me the risk is the baby can get tangled in it and become strangled. But that he thinks everything will be fine. Tells me not to google it bc I can always find worse case scenerio. So of course I google it. I'm beyond hysterical. Seeing that it can cause amputation, missing fingers etc.. I have to wait 10 days for my appt w the specialist.
Is anyone familiar with this? Is having an amniotic band the same as amniotic band syndrome?

Re: amniotic band

  • I have no experience but just wanted to send you some T&P's!  I hope everything is ok.
    BFP #1 09/26/2013 EDD 06/04/2013 MMC 11/01/2013
    BFP #2 05/15/2014 EDD 01/24/2015

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  • I have no experience with this either, but so many thoughts and prayers your way. How soon are you able to see the specialist?
    xo
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  • Sending T&Ps your way.  I have no experience or advise to offer, but wanted to say that I will be thinking about you.

    Lilypie Angel and Memorial tickersLilypie - (B9PH)

     

    Lilypie - (0YVF)
     TTC since 11/2009; Lap/HSG/Hysteroscopy: 5/2011 (endometriosis - removed; endocervical polyp - removed; high pressure in bilateral tubes - cleared)

    BFP #1: 8/4/11; DS1 born sleeping on 11/16/11 at 19w1d

    BFP # 2: 5/7/12, EDD 1/10/13, DS2 born 1/4/13

    BFP # 3: 11/8/13, EDD 7/17/14, mmc 10wks

    BFP # 4: 5/16/14, EDD 1/15/15, praying for our 2nd rainbow baby 

  • No experience, but sending T&Ps.

    DS born 10/22/2008
    DD born 12/23/2014

    m/c @10wks 12/2007
    m/c @4wks 3/2014


  • Many T&Ps to you!!! FX you're able to stay calm and not worry about this and that the meeting with the specialist goes very, very well.
    Began trying for a baby January 2012
    BFP 4.25.2013  EDD 1.3.2014  MMC 6.3.2013  D&C 6.19.2013
    BFP 11.3.2013  CP 11.6.2013
    BFP 3.31.2014 EDD 12.10.2014 Baby boy Carlson born 12.19.2014 
  • I have no advice but hoping the specialist can give you some answers.
  • Thank you. I just wish I knew more. I couldn't get an appt till 8/28. I called my ob hysterical and said I can't wait. He's going to call and try to get me in sooner. I'm
    Just so sad
  • I actually do know of someone this happened to ....their story isn't too happy but sounds like they had a pretty severe case of this whereas your baby sounds like he/she is out of the way. Hopefully the next ultrasound can give you some better piece of mind. If you have any questions feel free to PM me and I can ask my friend.
    Me: 33, Endocrine issues & FVL       DH: 32, Nothing 
    NTNP 2009-2012         TTC since 2012:
    • Clomid, 2 IUI cycles, and 5 IVF cycles = BFN
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    • Jack dx at 19w1d with Dandy Walker on 12/16/13
    • Severe Pre-e /HELLP set in Jack born sleeping at 20w1d on 12/23/13
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  • Sending lots of (((hugs))) and strength...

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  • I'm sending you lots of T&P
  • No experience here just wanted to offer big ((hugs)) & lots of T&Ps.
    BFP #2 3/19/14      EDD: 11/28/14
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  • Sending you lots of ((hugs)) and keeping you and your lo in my thoughts.

    EDD 5/2/14, NMC 9/11/13
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  • T&P to you!
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  • I've heard about this but never known anyone to have it. It sounds like your case is not as severe. I hope you can get in to the specialist quickly. Many positive thoughts your way!
    Lilypie - (vGZN)

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  • No personal experience but wanted to send you T&Ps!
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  • Yikes! Hope all is well! Sending t&p.
    **********************siggy/ticker warning**********************

    ***Losses mentioned.*** TTC #1 since May 2012. Me: 37, OH: 41. Ectopic August 2012 => tubal damage. :'(  Stage 1 endo removed June 2013. IVF #1 Oct/Nov 2013: Long Lupron with Gonal-F. 7R, 7M, 7F. 2 txfer@3d. Nothing frozen.  => M/C @ 8 wks. :'( Selected RPL panel all normal. Very hyper and brittle response to stims. IVF #2 (antagonist protocol) Feb 2014 => Converted to IUI (Perfect conditions). BFN. IVF #2.1 w/ new RE June 2014: Antagonist protocol. 33R, 31M, 30F, 19 blasts to test!!! I made it through without crashing!! :) Hats off to Dr. Fancypants!! ET of one 5AB blast. BFN. 13 10 CCS'ed snowflakes! FET #1 PUPO as of 7/29 Betas: 8/7@24, 8/9@97, 8/11@334 (etc.) Two sacs on 8/15, one seen on 8/18 after a bleed. U/s 8/25 (6+3) "perfect": 5.9 mm + HB@120bpm! U/s 9/4 (7+6): 15.9 mm + HB@172 bpm! Please, PLEASE stick this time!!!!
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  • I am sorry I have no advice, hopefully you can get an appointment sooner. Sending my positive thoughts and prayers your way.






     


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  • big hugs, T&P to you!
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  • I have no advice, just ((((HUGS)))) and T&Ps.

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    BFP #2  CP on 3/31/14
    BFP #3  8/11/14  EDD 4/22/14
  • So my appointment was moved to thurs. I'm terrified but hopeful for good news. Thanks for the T&P. Much appreciated!
  • Thinking of you, hopefully you can get some answers on Thursday I have a synechiae which is similar to an amniotic band. Which also was found at my A/S. Placement of the band is important hopefully yours will be out of the way and baby will have no problems. Just hang in there until you see the dr.
    BFP #1 7/25/13. MMC 8/26/13 8 weeks 5days Lilypie Angel and Memorial tickers Image and video hosting by TinyPic BFP #2 11/5/13 chemical pregnancy 11/9/13 BFP #3 12/28/13 "Our HOPE baby"
  • Lurky loo here.  

    Not sure if what I had was the same thing as what you had.  But at my NT scan, they saw a band of what the assume was scar tissue (from 2 previous D&Cs)  in my ute.  I was monitored more closely by an MFM. (had monthly u/s) By the time I had my AS, they could see that the band of tissue was moving off to the side of my uterus due to a growing baby and ute.  By 30 weeks, (I think) you couldn't even see the band anymore.  It was definitely scary, but my doctors were all very informative and reassuring.

    I think the scar tissue did prevent progress while I was in labor (I was stalled at 3-4 cm in triage) and a nurse had to manually remove/move it out of the way, but that wasn't too big of a deal.  

    I know @RosiePeare had something similar to this as well.  And now we both have beautiful, healthy rainbows!

    I hope your story turns out like ours; extra monitoring, but just to be cautious because everything is fine.  
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  • Thinking of you and hope you have a good, reassuring appointment on Thursday!

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  • I don't have any advice but I'm glad they were able to get you in sooner. Sending lots of T&Ps for good news tomorrow!

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    TTC #1 since January 2013

    BFP #1: April 5, 2013; EDD December 11, 2013; Missed M/C May 15, 2013

    BFP #2: February 17, 2014; EDD October 30, 2014; M/C March 15, 2014

    BFP #3: August 1, 2014; EDD April 14, 2015 - Praying for our RAINBOW!

    Lilypie Pregnancy tickers
  • Lurker::

    I am PGAL (13 weeks) but haven't intro'd here. I need to.

    Anyway, when I was pregnant with DS, I was told I had an amniotic band at around 9 weeks. He told me what it was and of course, I freaked out. He also told me the possibility of it being "old blood". He said if I spot/bleed and it's brown, that's probably what it was and no need to worry. I would have a follow up ultrasound in a 2 weeks. Well I was a mess those 2 weeks because I never bled. I was in tears when I went back and told him I didn't bleed. He did another u/s and it was gone. He told me my body may have absorbed the blood (??). I know 20 weeks is different than 9, but maybe it's blood?

    I know the fear of being told you may have an amniotic band. I am hoping all is well for you and you have a healthy baby. T&P!!
    imageimageimage
    As soon as I saw you, I knew an adventure was going to happen - Winnie the Pooh

    Married 8/22/09
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  • No experience. Try the high risk board, or search the bump on high risk. Maybe someone has posted something. Good luck!
    ***ticker warning*** DS 3/27/12 born 6 weeks early....my perfect boy !! Lilypie Third Birthday tickersLilypie First Birthday tickers [url=http://lilypie.com][img]http://lb1f.lilypie.com/z5R8p1.png[/img][/url] image<a href="http://www.thebump.com/?
  • My T&P are with you!  Hope you hear good news in the upcoming days!

    Lilypie Angel and Memorial tickers


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