Special Needs

Argh. Never ending.

DD1 had her first post op visit in Michigan.  We spent 14 hours from waking up on Wednesday 2 plane rides then finally at the hotel.  And the same for yesterday, so exhausting.  I took DD2s MRI (from may 2012 that was read as tethered but neurosurgeons disagreed) and she looked at it..and said...wait for it...she's tethered too!!  
I can't win!  I know it won't be as bad as DD1s retether in 3 spots but yet another thing we cold have fixed 2 years ago if everyone would just get on the same page and learn how to read an MRI and understand this crap.
DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


Re: Argh. Never ending.

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