Update on Heather and Harper

merc5411

** Please don't tag her here**

I talked to Heather and she said the appt went pretty well.  They are cutting back on one med to see if that helps her enzyme levels.  They are sticking with the original diagnosis which isn't great news.  They sent some more blood work off and that went badly.  The tech wasn't very good and it took a long time.  Poor sweet Harper. They will need to go to their local hospital for a follow up in 4-6 weeks.   Her ex behaved himself thankfully.  He must have sensed we were ready to drop a forearm on him.

Thank you all for all of the good thoughts and prayers!

KMRR86

Glad to hear!

[Deleted User]

The user and all related content has been deleted.

[Deleted User]

Thanks for the update. Glad he behaved himself

MRads

Thanks for the update. Poor, sweet Harper.

I always think you guys live in Phoenix, but that isn't the case, right?

fabk

Thanks for letting us know! I am glad to hear he behaved.

lovemyminions

I'm glad it went well. Thanks for the update

andrea0418

Thanks for the update!

merc5411

@MRads‌ no, we live in North Carolina.

MRads

I see that from your new avatar, lol.

giraffeluvspi

I'm right down the road and prepared to load up the J13 nut punch bus if it is needed.

I'm glad ex behaved himself, and hope they get some answers soon.

PrimRoseMama

ChrissieMeas said:

I'm right down the road and prepared to load up the J13 nut punch bus if it is needed.

I'm glad ex behaved himself, and hope they get some answers soon.

:-bd

martyn17

Thanks for the update!! Thinking of sweet Harper. And I'll be back down to Chapel Hill in early September of there are any nuts that need punching.

coco2787

Glad she made it through the trip! Thanks for the update.

arlingirl

Thanks for the update. Glad the ex behaved himself.

Altima80

Thanks for updating us!

KateJuly2013

Happy things went okay

NewbieMomie

Thanks for the update! Sending hugs their way.

Clyde013

Thanks for the update. I've been thinking about H&H and will continue. Hope they get some good news soon!

Stacey099

>:D< for H&H
Thanks for the update!

dliz87

Thanks for the update. Sending so many good thoughts their way.

bobcee

Thanks for the update. Glad ex behaved and sending continued T&Ps their way.

atlvol

Thanks for the update! 

opheliainwaders

Thanks for the update - what a trooper you are, Harper! And Heather, so many hugs! I can't believe what an awesome mom you are (I mean, I can, but you have managed to get over so many huge hurdles, and it's truly amazing).

merc5411

@iandloveandyou1 She just doesn’t want it linked to her SN.

@lwrightenator Her original diagnosis is a progressive liver disorder.  I think that’s the only thing she’s comfortable with me sharing.  You could PM her for more details.

@ChrissieMeas Are you close to us too?  Where are you?

@Martyn17 Let us know when you are coming.  If you have time we can plan a GTG.

martyn17

@merc5411 Its for work, so I'll let you know when I have more details

giraffeluvspi

merc5411 said:

@iandloveandyou1 She just doesn’t want it linked to her SN.

@lwrightenator Her original diagnosis is a progressive liver disorder.  I think that’s the only thing she’s comfortable with me sharing.  You could PM her for more details.

@ChrissieMeas Are you close to us too?  Where are you?

@Martyn17 Let us know when you are coming.  If you have time we can plan a GTG.

@Merc5411 I'm close to where she was, not to home. 

[Deleted User]

Thanks for the update. Lots of hugs.