Right tube removed due to hydrosphalinx

lexi143

Hello all I am new to this forum. I had hsg done in October because my husband and I have been trying to get pregnant for 2 years and unsuccessful. The hag showed right tube was blocked but the left was opened. I went to a infertility specialist and she did an ultrasound and it showed that I had hydropshalinx in the right tube. My ovaries uterus and cervix looked good in the ultra sound. I went in for lap surgery to remove my right tube Monday. Come to find out the left tube is twisted but opened so she left it in. The doc said I am high risk for ectopic pregnancy because of the twisted tube. The right tube is removed now. I am very upset because I was under the impression the left tube was ok. She tried untwisting it but said it was stuck to the ovaries and didn't want to ruin the ovaries. I feel lost like my only option is ivf. Does anyone have any experience with one tube that's twisted and one removed?

sweetsurrender9

If you've got one tube that might have a minimal opening and one that's been removed, your only option may very well be IVF.  If you're seeing an RE, ask if they could repeat your HSG to see what your remaining tube looks like for sure.  I know that if there's no hydrosalpinx, some doctors will leave a blocked tube in place, especially if they're worried that they'll damage an ovary. 

I wish you luck, and hope you get a full answer soon.

mrs.willie

I had my right tube removed and was told my left tube was ok. My RE recommended IVF because with previous IUIs I was only responding and ovulating on my right side and the chances of my left tube picking it up, wile possible, were slim. If they had increased my meds to try to get my left side to respond, I would've overstimmed for an IUI. With IVF, they were able to get both sides to respond and I have a better chance.

przemosbabe

I'm very sorry to hear about your tubes. It's only natural to be so upset. The good news for you is if that is your only issue, then you have a very good chance with IVF. I have read somewhere that IVF is the most successful for women who's only issue is tubal. If that is your only issue then I wouldn't worry so much although I know its hard. It's a good thing that you found out about the hydro because that can be detrimental to IVF if you do need if

daydreamernyc

@MrsWillie‌ looks like we both have the same story but you are a few months ahead of me. We are hesitating to move to IVF but I think it's going to be in our future (my RE already want to switch over after my surgery).  We already had one cycle where the follies were all on the tubeless side (IUI cancelled)

Just wanted to send you hugs after reading your siggie

lexi143

Thanks for the replies and good wishes! Does anyone have experience with a twisted Fallopian tube?

pblge

**loss mentioned**

Sorry you're dealing with this. ((hugs))

I believe that I started my TTC journey with one good tube, but there's no way to be certain. Pretty soon after we started trying, I had an ectopic in my right tube, and an appalling idiot of a doctor didn't catch it for a weeks (long story), so it completely ruined the tube, although it's still there. As an aside, I now worry about hydrosphalinx ruining my IVF chances, so having them taken out isn't a bad thing.

As for the other tube, I'd thought it was okay, but my new RE took one look at the HSG and said that the left tube was also a no-go. It's a long and convoluted path from ovary to uterus on that side. This would explain why we've never gotten pregnant on our own in the almost two years since the right tube was ruined.

So, I'm not sure what you mean by a twisted tube, but I think both of mine now count. I too worry about more ectopic pregnancies, which is one reason I'm not invested in trying on our own any more. I'm not sure what you're hoping to hear from us, but if your remaining tube is questionable, I would definitely say IVF is the way to go. I believe that the risk of ectopics is much lower, although it is still possible.

It is definitely hard to come to terms with the idea that assisted reproduction is the only way to get pregnant, and I think there's some grieving that must come along with that, as @IFinTN said. If you can financially manage it, it's a really good plan. As for the cost-benefit analysis of trying on your own relative to the risk of an ectopic, only you and your doctor can determine that. It's always worthwhile to get a second opinion on these things.