mini-rant

emmuffy

Ugh. Weirdest morning at the RE's office today. They didn't have me down for day 3 testing and kept telling me I was supposed to be coming in tomorrow. Finally, we got that sorted out. Then, I was having my blood drawn, and I noticed that the tech was filling two tubes instead of one. I asked what the other one was for, and the tech told me it was for my genetic testing. I said I wasn't having genetic testing, and then she showed me the requisition form with my name and my doctor's signature. Huh. So I went and cornered my nurse afterwards and asked her, and she said oh yeah, that's because you're starting IVF, it takes 6-8 weeks. WTF? Why am I finding out about presumably important testing after the fact? Why did no one explain this to me in advance and give me a chance to ask questions (and give consent?!). I scheduled an appointment with the head nurse to get more information, and she explained I was having karyotype testing, which my RE orders for all her IVF patients. Nothing about this was mentioned in my IVF consult a few weeks ago. I would have had some questions!

Has anyone else had karyotype testing done? I understand the testing comes back normal for most people... but I have no idea what would happen if the results were abnormal.

I have a feeling today's not going to be a good day. I need to restrain myself from doing too much Googling.

emmuffy

Oh, and adding to the fun, I have cysts on both ovaries from the Clomid last cycle, so I may not even be able to go ahead with this cycle. Not that a forced break would be such a bad thing, frankly.

catlover790

I am sorry about the rough day you had at your RE's office! I just posted a thread about my REs not communicating with each other and it's so frustrating! 

I do think that you should have to consent to the genetic testing but I am not sure about the rules regarding it. I hope you are able to get it all sorted out soon.

BunnyBerry

So sorry about all that stress! No advice about the testing. Not cool for them to leave you in the dark. 

I hope the timing works out to be just what you need, whether it's a break for cysts or not.

WishUponAChild

I know how you feel with not wanting to search the web, I get anxiety it I read too much stuff like that.
 
I did look it up on WebMd for you and basically its to help determine risks of inherited genetic conditions like Down Syndrome (ect.)  It suggests talking to a genetic counselor about any results. 

Sounds like your RE is just making sure everything is on the table before you are on theirs

(If you already knew this I am sorry for being on repeat.)

Hollowvic

They asked me on my first visit to do genetic testing, I didn't want it, the nurse looked shocked when I said no.

nswain85

Yikes! I'm sorry about that, I would have been upset about it also. I can't offer any info about the testing but wanted to wish you good luck!

Mrs.Ess

I would definitely expect them to inform me Of something like this ahead of time. Sorry and I agree googling can be dangerous

emmuffy

Thanks for the support everyone! At least I know I wasn't being unreasonable in my reaction. Hopefully the tests come back normal and I won't have anything to worry about.

Also, I finally have a picture in my signature! This took me a really embarrassing amount of time to figure out .

Tiko99

I totally feel your frustration. I wasn't feeling well two years ago and I was gaining weight for no reason so I went to the doctor (regular, not fertility related) and he gave me paperwork to get my blood drawn and I saw HIV on the list and freaked out because I always thought you had to give consent to have an HIV test and all I could think about was "why does my doctor think I have HIV??" so anyway, I hate it when doctors just go about their business ordering tests here and there and don't give you the full details.

We had to have an infectious disease test prior to having an IUI, but I'm not sure if it's the same as an IVF blood panel. Some genetic testing was included including cystic fibrosis and a TON of autoimmune disease tests.

I would def ask for clarification and ask that things like this need to be brought up in a prior discussion. Ughhh doctors can be so annoying. Good luck with everything!