Hi everyone, hopefully I'm in the right place. I apologize in advance for any misuse in terminology!
My daughter, Emeline, is 13 months old and has been working with a PT for the last few months because her gross motor skills are delayed. The short version is that she hasn't lost all of her infant reflexes yet and struggles with balance and her sense of position in the world. Her core and quad muscles are tight, so most of our time is spent on exercising those areas and helping her get used to the idea of being upright. At our most recent appointment, yesterday, the PT also mentioned that she suspects an oral sensory issue, mostly because she loves really spicy foods, is funny about foods with certain textures, is really attached to her pacifier, and has sensory issues with her feet. We've been working on that - she'll now wear shoes and allow us to touch and squeeze her feet, where she used to recoil and screech if you touched them at all. She also prefers tight holding, enjoys wearing a backpack as she crawls around, and really seems to like the weighted blanket.
I guess I don't really have a question, per se - rather just wanted to be among people who get the uncertainty. I had a lot of pushback from well-meaning family members when we were initially referred for evaluation - many comments on how she'll do things on her own schedule, we were worrying for nothing, she's still within "normal," etc., but we did qualify for EI services, without any doubt. I don't really know where we're going or what we're doing, we don't have a plan other that "get an electric toothbrush to use before meals," but I guess I'm getting nervous about how to manage these issues. I made the mistake of googling and found a bunch of articles linking oral sensory issues to eating disorders later in life, and that scares me because I suffered from years of disordered eating and was really that my daughter would be spared.
So no real point, thanks for reading, and I welcome any experience that you guys might have to offer.
Esri 5K 7.16.2014 - 21:30
Heart Half Marathon 3.16.2014 - 1:43:30
Canton City Marathon 9.8.14 - 3:30:56