Hope. It's a funny thing. It can be the only thing you've got left and the same thing that's completely breaking you...
I'm new to this whole thing, so bare with me. I've maybe avoided joining any kind of support group or forum because... because? I really don't know. Maybe it would make this all too real? It seemed maybe a little self indulgent... Who knows, but I'm here now, hoping to find some common ground. Hoping I'm not the only woman feeling completely broken and fighting hopelessness with every breath I've got.
A little about me... I've been married for 2 years now and was diagnosed with PCOS 2.5 years ago. It's strange, I had completely normal cycles, like to the minute, until the second I turned 30. Ever since then, I've been all over the place. I'm also a chronic avoider, which is why I hadn't returned to the doctor since receiving that PCOS diagnosis. I never got a good feeling from the doctor I was seeing... you see, I'm a nurse (labor/delivery nurse of all things!) and I felt like I was getting bad advice, so naturally, I just never went back. Dumb, I know. Totally wasting my own time. It's completely nonsensical. Honestly, I'm terrified of the whole thing. Terrified that my worst nightmares are actually true and we can't have a baby. What then? What do I tell people when they relentlessly ask when we're finally going to have a baby, because, I'm not getting any younger, you know? And what do you tell people when the fertility issue isn't just on the woman?
Male infertility is the darkest little secret that no one can talk about. For a woman to have fertility issues, sure, that's acceptable. But for a man to not be able to father children, don't ever speak of that. My husband has never been able to ejaculate from intercourse. We've been together for 4.5 years and it has never happened. Not once. Not on accident. He's had hormone tests, testosterone replacement... we've tried sex therapy. Nothing has seemed to work. It has been the most heart breaking thing to have to watch him go through this. It is the most demoralizing thing for him; he's humiliated and feels completely alone. I'm incredibly supportive of him, but completely at a loss on what to do. I try so hard to not take it personally, but every failed attempt that we have, is just one more notch down. At this point, I honestly feel like this is in his head; he's become a self-fulfilling prophecy. He's so terrified that he won't be able to perform, that of course, he's not able to perform. We honestly haven't even attempted intercourse since... I don't even know! December? Since then, all pregnancy attempts that we've made have been through at home insemination, I guess. I don't even know if this is recommended, but I didn't know what else to do.
I obsessively keep track of my cycles. Every single vague symptom is tracked meticulously. It makes me feel like a crazy person. I constantly fight thoughts of "should I be taking this as a cosmic hint? Are we just not meant to have kids?" If I don't ovulate and he can't ejaculate inside of me, I mean come on?!!! Thems not good odds, folks! lol. Luckily, our relationship is strong. Somehow, we've been able to keep our senses of humor throughout this whole thing... it has truly been our saving grace. I won't go into detail about the night we tried the d*ck pump and the HILARITY that ensued! Sorry, TMI?
I'm happy to say, though, that I finally found a doctor that I feel like I can trust and be truly honest with about everything that's going on, with me and him. She was so understanding and non-judgmental, it has meant the world to me. She wants to start fresh with my labs and get a baseline, since it's been so long since I've been to the doctor. My day 4 FSH was normal, which was a huge relief. AND she ordered a semen analysis for my hubby, and that was normal too! We've had so many let downs and I don't want to get my hopes up, but for the first time, I feel like, well, maybe we can have a baby. Maybe some day I'll get to be the woman who gets to watch my stomach grow... gets to experience the miracle of feeling that baby come out of my body. I want that so desperately that it's nearly all consuming. I have never been this honest about that. I feel like I have to play it cool, keep it together... Maybe here, I can let down my facade? It's not always pretty, is it?
So again, it all comes back to hope. I hope that someone here can understand, maybe even relate to what we're going through. I hope that my doctor can help us. I hope that one day we'll get pregnant. But I also hold on to being realistic and I have to entertain the idea that maybe that won't happen. But... here's to hoping.
Re: Hoping...
Me: 24 DH: 26
Sept 2012 - Married Love of My Life
AO, possible PCOS
TTC for 15 months - Success!!!
Due Date: May 6, 2015
DS induced April 27, 2015 - Hypertension
I would continue to be hopeful because as others have said there are options such as IUI that could help your DH be comfortable. Also, his SA was normal so that's a good thing!
The ladies here are very knowledgeable and have been so welcoming to me as I intro'd recently too. It is nice to have support from others who truly understand the pain of IF. Good luck with everything!
Me: 32 DH:34
Married: 7.6.13
TTC: 1 year
DX- Me: Endometriosis diagnosed in 2002
BBT: 12/2012
7/2013 to 12/2013-TTC
1/2014-Laparoscopy, dx Stage 3 Endometriosis
1/2014 to 5/2014- Natural TTC
5/2014- First appointment with RE
6/2104- Femera + Ovidrel+ 1 follice 18mm +TI= BFN
7/2014 - Femera + Follistim + Ovidrel + IUI = ???
Missed M/C natural cycle 10/2013
DX PCOS 3/2014
2 cycles Clomid 50 mg + Ovidrel + TI
1 cycle Clomid 50 mg + TI - no response stair-stepped to Clomid 75 mg + Ovidrel + TI
1 cycle Clomid 50 mg + Ovidrel + IUI
1 cycle Letrozole 7.5 mg + 150 mg Follistim + Ovidrel + TI
1 cycle Letrozole 7.5 mg + 150 mg Folistim + Ovidrel + IUI
1 cycle Letrozole 7.5 mg + 150 mg Follistim - no response, repeated Letrozole 7.5 mg + 150 mg Follistim + Ovidrel + IUI = success! 12/2014
Beta 1 - 15 dpiui, 324, Beta 2 - 17 dpiui 750. Twins!!
My Blog: pcosandpizza.blogspot.com