My youngest child is 9 months old. He has reactive airway disease, adenoid hypertrophy, pharyngeal collapse, possible laryngomalacia (for some reason we are having a very difficult timing getting doctors to agree on a diagnosis), sleep apnea and he aspirates when he eats. We only discovered the aspiration three weeks ago. He is on thickened feeds now and still aspirates on occasion, though not every time he swallows like before. He also has texture issues with food and won't eat anything that is not perfectly smoothly pureed. Add that to the aspiration and he is on a very limited diet. He is scheduled to have his adenoids removed and a rigid bronchoscopy in 2 weeks. We are hopeful that with the rigid bronchoscopy we might get a better idea about his airway problems, though he's already had 2 flexible scopes, they had conflicting results. The surgeon plans to repair anything she finds that can be repaired at the same time, so I have no idea how big of a surgery he may end up having. He just had his 9 month well check on Monday and he is delayed across the board developmentally. My pediatrician just brought up the possibility of an underlying genetic condition. He's not convinced it's the case, he's just getting more concerned as more issues get added on. We are supposed to be having him evaluated by the therapy clinic to get a better idea of his delays. We have known for a month or so he would need feeding therapy. He is my youngest of four, so I had a suspicion he was behind in other areas as well, but I didn't realize it was in all areas. The pediatrician also mentioned sending us to a geneticist if he doesn't start to catch up after his surgery. He was such a healthy, chubby full term baby, I never saw all of this coming. Every time I see a new doctor they look at me like I'm crazy until they read through his records. He looks so big and strong. Anyway, I don't have any specific questions I suppose, just introducing myself. It's hard not knowing what is going on with him. It's scary to imagine him having surgery.
Kristen (7), Timothy (5), Robert (3), Charles (9 months)