**6/16/14 Hanging on to a Dream check in** come on in if waiting to cycle for any reason

jencity9

Welcome to "Hanging On To a Dream!" This group is designed as a check-in for those that are not currently part of a monthly IVF cycling group but would like some camaraderie while waiting to cycle for any reason. Please join us if your monthly cycling group has not started and tell us how you are doing. Please also let us know if you are (1) waiting for 1st cycle; (2) in between cycles; or (3) on hold for whatever reason. Please also tell us what your next plans are (IVF with ICSI, FET, WTF appt. etc.) and what month you hope to cycle.

QOTW: What is your favorite movie(s) to watch when you need to be cheered up?

Badge Link Here:  https://i62.tinypic.com/2dl9ap0.jpg

Check-In leader IFinTN (jencity9 currently substituting)

Posted every Sunday or Monday

Waiting for 1st Cycle

alpCRNA (waiting on next cycle for BCP, will do IVF/ICSI #1)
bandy514 (pursuing IVF this summer)
caterinac (IVF #1 in August/September)
germangirl6988 (RE consult for a plan)
jen102279 (IVF#1 in 2-3 months)
jodiboch (IVF/ICSI #1)
kinderteach78 (July IVF#1, waiting on AF to start BCP)
kushie77 (making decisions)
lisa3683 (May/June IVF #1)
mamakakes611 (April/May IVF #1)
mushyweetbix (Consult April)

nariadreaming (October IVF #1)
purpledaisy923 (IVF #1 September)
starlightgator (hysteroscopy wednesday 6/11)

sunni01 (WTF in Feb)
sweetieshellieh (IVF #1 August?, July consult)
sweetsurrender9 (IVF #1 August)
tifga (RE appt in July, then hopefully IVF/ICSI #1)

wa1215 (Summer IVF #1)

In Between Cycles

amshark (wtf appt 6/13 and then hopefully IVF #2)
aurorap725 (IVF or FET in August)
blueeyes233 (Summer IVF #3)
ifintn (October FET #1)
kittenmitten9 (Fall FET #1)
lm92599 (trying IUI before moving on to IVF #2)
missmarypoppins (July/August IVF#3, Dr. KK 7/1)
o2girl (Sept FET)
poohniki (DS IUI #2, making decisions)
princessisadora (IUI #2, meeting with new RE)
ronniesgirl1981 (IVF#2 - probably start BC in July)
runcc37 (Making decisions, Dr. KK in August/Sept.)
sportschick33 (June/July IVT #2)

stbmrsmiller (Donor Embryo consults)

sunny b (Waiting for FET)

sunshinedaisies000 (August FET #1)
sweetpotato123 (FET September)

tea+ (not sure IVF#2)
tptbabe (IVF/ICSI #2 December or January)
twinkie0612 (Dr. KK in August, considering fresh 4th cycle)

zenysom (Summer IVF#2 or FET)

Moving on to Summer Sparklers!
StacyLH24
Jetta83306
jencity9
GrailSeeker14
jessimi06
Alicia_R1

Big (((((Hugs))))):

tptbabe

RunCC37

Welcome new members!

starlightgator
Bandy514
alpCRNA
CaterinaC
Jodiboch‌

tptbabe

Looks like I'm rejoining you ladies over here!

We just had our first IVF/ICSI which ended in a CP, with nothing to freeze. We're looking at trying again in 6 months, so either December or January? (We don't know if they close over Christmas, so that will determine which month we cycle in.) We have our WTF next week, which will determine what further testing we'll be doing and how we'll be moving forward.

Twinkie0612

GL with your testing @CaterinaC!

I'm sorry your back @tptbabe.

No real updates here. We are moving along getting things going for our frozen donor eggs. Other than that, just waiting until the end of August for my appointment with Dr. KK.

QOTW: I don't really have a movie that cheers me up, but sometimes I like to do a movie marathon. Some of my favorites are Harry Potter or Lord of the Rings.

Jetta83306

Hi ladies. I am (Lord willing) moving onto the Summer Sparklers.

But now I'm confused. I do have a call out to my doctor's office, but was wondering if anyone else has used Depot Lupron for IVF prep instead of BC. I am not allowed to use BC anymore so we used the Depot Lupron instead. A week ago I got my injection at the doctor's office. The next day I had my post-op appointment and talked to my doctor about the upcoming cycle in July. I could have sworn he said I would NOT get my period on the depot lupron shot. Well, yesterday I started my period... I hope this isn't going to mess things up. Hoping the nurse calls me back soon!!!

RunCC37

@tptbabe, I'm so sorry to see you back here. Still sending lots of hugs!

@Twinkie0612, I'm so excited for your donated eggs! And, like you, I'm counting down until Dr. KK. 

@Jetta83306, I'm sorry that I don't know anything about Lupron Depot. I can't help but to think of Home Depot anytime I see that. I'm a dork!

There's really not much to update in my world. I am expecting my period this week. I'd love for it not to come seeing how we did IUI #5, but I'm keeping realistic expectations. I just booked my flight for my appointment with Dr. KK, so that just got real. We will start looking at DEgg profiles in July, and will have a serious discussion about doing more IUIs in the future. I don't want to do anymore, but could be swayed by DH.

QOTW: I don't really have any cheer up movies on hand... but whenever I'm watching TV and sulking, I usually find reruns of SITC and Friends. Love those shows!

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jen102279

Good morning Ladies

I go in for my HSN tomorrow afternoon, and the we are still waiting to hear back from the lab re:PGD testing and whether or not they can make a probe for us.

@tptbabeI'm sorry you are going through this I hope you get a good plan after the WTF appt next week.

jessimi06

Good afternoon ladies! I started bcp yesterday and will be moving to the summer sparklers check in once it starts.

@Jetta83306‌ unfortunately I haven't heard of using lupron depot instead of bcp, but hopefully someone can be more useful

QOTW- I don't really have a go to movie. However, I've been known to bum on the couch and have a netflix tv show marathon.

O2girl

Hello lovelies.
@jencity9 thank you for the checkin and congrats on moving to the summer sparklers!

AFM:
I'm sorta benched by my body right now. My D&C was about 7 weeks ago but my betas are still positive :-/
So until my Beta is zero and my AF shows her face I can't start Lupron :-q

Once my AF shows up though my RE is only going to have me do 1-2 months of Lupron before my FET so \:D/ hopefully that means a sept transfer!!! Whoop whoop!!

Big hugs @tptbabe‌
Congrats to everyone moving forward.
Hugs to anyone who needs them.

Xo

ronniesgirl1981

I'm still here!!  Just had my annual CD3 testing completed and my TSH was a little low, so I need to follow up on that.  GRRR!!!

QOTD:  THIS IS THE END!!!  I have gushed about this stupid movie on 3T, but I don't think I have over here.  This movie is hysterical.  Do not judge me.  I could watch it every day. 

sweetsurrender9

I officially got word that my right tube, which I didn't think looked good on the HSG is actually open!  So if we need to for some reason, we'll be able to convert an IVF cycle to IUI.  However, my PAP came back abnormal, so now I have to have a colposcopy next week.  I'm fairly bummed, because I think there's a real possibility that we'll have to delay our cycle until August.  Suck.

poohniki

Hi ladies!

Not too much going on. My therapist had another RE that she works with look at my case to try and help me understand whats going on. So apparently my IVFs may have failed due to bad eggs, poor uterus, or dh's sperm- well that narrows that down.. I'm also a little ticked because I told my therapist don't bother if he didn't know about SERs and she agreed. He said it could be any of those "cell parts" like the ribosome or mitochondria...REALLY? Because the studies I had read about dysmorphic oocytes never mention any of the other cell organelles- only the smooth endoplasmic reticulum- Vent over... He did he would recommend having a lap to see if my tubes are open...

That did get me thinking.. since now I'm working backwards, my tubes were never checked because we never needed them. I asked my nurse about an HSG.. Is that common to do before an IUI? I'm not looking for any more pain- but since my diagnosis of a "congenital uterine anomaly" I guess my tubes could be f'd up too.   And if it isn't too apparent by my tone- I'm pretty sure I'm PMSing.. so hopefully AF will be here soon.

RunCC37

Hugs @poohniki‌. Yes, I'd say a HSG is a good move since you're doing IUIs. The tubes have to be open to have a chance. Though I think there's another way to assess that (SHG?) which you've probably done with your IVF cycles, right?

poohniki

Yeah @runcc37 I've had two of them, but I read that they don't really show you what the tubes look like- but they may show endo

Seriously, though, if I find out one more thing wrong with me I may need a really long break and lots of wine.

BTW your new ticker is mighty badass! love it!

QOTW: Crazy, Stupid, Love seems to work for a good pick me up.

RunCC37

@poohniki‌, I say go for the wine anyways that's not a bad idea! I'm gonna get some right now!! And the ticker IS badass cause that's how we roll on Team FUIF! Haha

PurpleDaisy923

We have officially decided that we are going to do IVF#1 in September! I am going to start on birth control sometime in July.

QOTW: My go-to movie to cheer me up is "Let's Go to Prison" with Dax Shepard. It is stupid humor, but it always makes me smile. Not to mention it was the movie my DH and I saw on our first date!

Jodiboch

Hi there! I'm new here. Husband has very low count so far all is normal with me. We r waiting for my period to start ivf and have an hsg. We will use the icsi procedure. I'm super scared but will do anything for my baby.

Sunny B

Still waiting on my thyroid. I hope the TSH is dropping as we speak. 

@jencity9 if you could change my status to waiting for FET or something of the like, that would be great

@tptbabe I am thinking of you girl.

@O2girl I hope your betas drop soon. Hoping you get that September transfer.

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ronniesgirl1981

@Jodiboch‌ Welcome and good luck. Also, consider making an intro post so that we can all get to know you.

sweetpotato123

Hi all! Can I come over here for a bit? Still on the mend from severe ohss last week. My labs came back this morning much better, so now I just need to pee all this fluid out!! Looks like we're going to shoot for a September FET.

Alicia_R1

Hi all, I guess I find myself over here again. Right now we are waiting to start our first IVF cycle (last year we tried IVM), now after 3 failed IUI's we are moving on to IVF. We are waiting on insurance approval, I'm hoping they are smart enough to realize with all my large cysts left over from our last IUI there is no time before I turn 35 next month to do another IUI....they want under 35 to have 6 IUI's and 35+ just need to have 3. For once, getting a year older has an advantage now that I'm over 21.

We have our IVF consult and I've been on BCP's since Saturday when I had my day 3 U/S and blood work...and where they found lots of large cysts in the 45-57 range and a bunch more in the 20's and 30's. I was in shock as he kept reading off the numbers.

so here's to hoping our insurance approves us to start cycling in July and as soon as these cysts are gone.

QOTW: usually super troopers. 

jen102279

ronniesgirl1981 said:

I'm still here!!  Just had my annual CD3 testing completed and my TSH was a little low, so I need to follow up on that.  GRRR!!!

QOTD:  THIS IS THE END!!!  I have gushed about this stupid movie on 3T, but I don't think I have over here.  This movie is hysterical.  Do not judge me.  I could watch it every day. 

I have to do follow up on my TSH also, hope it isn't any reason to delay anything...

kushie77

Hi.  I haven't been around much on IF but we're still making decisions as to using DS or just pursuing adoption.  

((HUGS)) to everyone.  

SweetieShellieH

I apologize that my update is a little long! I have some venting to do.

Today while on lunch at work I got a call from the RE's office to cancel my July 19 app. Apparently they've suddenly decided no consult appointments on the weekend. She wanted to reschedule it for June 26, but I told her that's too early, because my DH needs to be on his meds for 3 months before he can do his SA. Then she told me the next available appointment isn't until SEPTEMBER!!! I told her that was ridiculous and this isn't the first time I've had an appointment cancelled and moved forward by such a huge amount of time! She said she would see what she can do. The second I got of the phone I started crying in front of my co-workers (they all know about our IF) and then called my DH. As I was talking to him the clinic called back and she was able to put us in for July 25th. Both DH and I will have to lose part or a full day of work for this, but I guess we have no choice! 

This really sucks because I'll be getting AF any day now (BFN this am, 14dpo) so I would have been getting my next AF right around our appointment date. We could have started the process right away. Now we'll have to wait even longer because I'll still be early in my cycle, and I assume I have to wait for the next cycle to start to begin the IVF process (since I am assuming DH's SA will still be crappy and we have to do IVF)

 UGH!!!

jencity9

@SweetieShellieH‌ That is crazy!!! I wonder if you could at least get BCP to start now just in case so that after your next AF you can start stims assuming you will move forward with IVF then?

princessisadora

@sweetshellieH I am glad you they could reschedule you sooner. I know how frustrating it is when you have rearranged your whole life for that appointment and then they cancel on you.

@poohniki as others have already said I would def ask about HSG, not the most pleasant of procedures but it has to be done.

Hi Girls. Congrats to all of you going on to the Summer Sparklers and good luck.

I have been MIA this week because I have been sick! Have a terrible cold and I am really annoyed it has prevented me from my workout routine. I am on the mend now and slowly getting back into being active. 

Last meeting with my nutritionist she said I should schedule a follow up with my RE as she is very pleased with my progress. The earliest they could fit me in was July 11th. I will have to reschedule work but I am happy we hopefully will get the ball rolling once again.

QOTW: I don't think I have a go to movie but if I had to chose a "feel good warm fuzzy movie" would be Elf 

jencity9

@IFinTN I'm glad your surgery went well!!

I will make sure this thread is updated completely before your next check in!

O2girl

IFinTN said:

@jencity9 I'm back!! Since you are moving to July group (yay!) I can take over next week. Thank you for doing it and for alphabetizing the list. You rock!

I have a lot to catch up on, I will go through the threads I missed before updating next Monday. So for now I will leave an update.

Tl:dr version, surgery went well, FET hopefully in Oct.

Had surgery today and it went well. No hydrosalpinx but rather a para tubal cyst on the left side wrapping around the outside of tube. Sent off for pathology, expecting benign finding. Both tubes were dilated and enlarged, so they came out (good riddance!) At least a tubal ectopic is no longer an issue and even though there was not a hydro, they were useless anyway. No regrets.

The ovaries were enlarged and the right one had some cysts. No surprise there, just confirming my PCOS.

Big surprise that was not so surprising was a pocket of "significant quantity" endo behind uterus and between it a rectum (pouch of Douglas I think?) She (OB Gyn) did not remove it, said it was too dangerous being so close to ute and bowels. I think this explains some bowel issues and the fact that the vag cam hurts like a MF when I am stimming, all that estrogen probably made the endo rage in that pocket!!

I need to speak to RE to see if I need to do Lupron Depot for a few months to calm it down before FET. I have a phone consult scheduled for the end of June. I may push for it no matter what as it can't possibly hurt to take it from what I have read.

Right now we are thinking FET in October, so 2-3 months of Lupron Depot should work fine. DH just got a new job and will need that long to get enough vacation to come to CCRM with me for the FET. Not going without him!!

Hi sweets! So happy the surgery went well. Fx the depot Lupron works it's wonders!

RunCC37

:: runs and tackles @IFinTN :: I missed you & am glad to see such a positive report (well, not so positive with the endo part of things, but I sense a lot of hope in your tone which is AWESOME).  >:D< Rest up, girlie, and I'm sending you lots of healing thoughts for a smooth recovery.

AFM, a little update: IUI #5 is officially a bust. No one is surprised, but it still hurts like hell. I blogged about it if you care to read my ramblings (link in siggy or click here for direct link).

princessisadora

@IFinTN so glad to hear all went well and you are on the mend!

poohniki

@IFinTN Thanks for the message. Hope you are feeling better. We all missed you lots!

I had some slight endo show up on my biophysical uterine profile done by Dr. KK- so I'm not sure about a lap. I'm kinda over all of this at this point. It wasn't my RE- it was the one my therapist used and works with.. I don't think she believed me when I said my condition is really rare.

I've thought about CCRM but I've met another person diagnosed with SERs through TB that cycled at CCRM and their solution was to use more estrogen and get as many eggs as possible because one or two should have no SERs. I've read a few REs make statements that you cannot have cycles where every egg has an SER- and mine did.. soo... She went onto donor eggs.. My RE has treated other patients with them- but I may request to see one of the founders if I keep getting the feeling we are treating the next thing.. I really think we need to step back and look at the whole picture since all my bloodwork is different now.. but I don't know anymore..