Oh no! I am so sorry you are going through this, it must be so stressful and scary! I can only imagine. Noah is so lucky to have such a great mom. Lots of hugs and Ts and Ps to you both, I hope you get some answers and some help soon!
I'm so sorry to read this. I know they weren't the answers you wanted at all.
In spite of everything he is dealing with, something you said stood out to me. He smiles and coos for his family. He has no idea; he's just a little guy who loves his mama.
Annnddd, you got the tears rolling again... Thank you.
Isabelle born via emergency c-section after her heart stopped 04.29.10 asthma, astigmatism, amblyopia, allergies, tongue and maxillary ties
Noah born via RCS 12.09.13 14q11.2 duplication, receptive language and adaptive behavior delays multiple health concerns under evaluation follow him here: www.facebook.com/lovefornoah
I'm so sorry, but am glad you were able to get the appointment bumped up to yesterday. Hopefully there will be answers coming your way soon. You're doing an amazing job, stay strong for that sweet guy!
I'm sorry you're dealing with all of this. Leila was born having seizures that were caused by a brain tumor which was later removed. Shes doing well now but she has some delays and I have a lot of experience with EEGS and MRI's so please don't hesitate to pm me if you have questions or need support!
Re: UPDATED: Neurology Appt Update - Not great news
asthma, astigmatism, amblyopia, allergies, tongue and maxillary ties
Noah born via RCS 12.09.13
14q11.2 duplication, receptive language and adaptive behavior delays
multiple health concerns under evaluation
follow him here: www.facebook.com/lovefornoah
Dec '13 June Siggy - Awkward Swimsuit Photo
DS born Dec 10, 2013