Spina Bifida

meggiev123 · May 2014

I'm so sorry to hear you're having to go through this. Sending big hugs!

vrj0522 · May 2014

<<hugs>> T&Ps for your and your baby.

tamibattle · May 2014

((((Hugs))))) T&P with you and your hubby!

Sockgnome78 · May 2014

I am so sorry OP! T&P for you and your family.

heatherjeanp · May 2014

I'm so sorry that you are going through this. My thoughts are with you.

raynes · May 2014

I'm so sorry you're going through this, especially that you have to wait until Wednesday. I prescribe a new book and some ice cream in the mean time.

One of the moms from my other BMB had twins, and one of the girls had SB. She started walking not too long ago.

Here's her blog, there's some information there: https://erniebufflo.com/

DanielleB27 · May 2014

My thoughts and prayers are with you and your family! I'm gonna repeat PP and say that there is so much help/support/treatment options out there. One that the physical therapist I work with uses with the kids she sees with spina bifida is the Feldenkrais method. She's seen amazing results with this, so I would encourage you to give it a look! Let me know if you have any questions about it, too. I'm more than happy to help any way I can!

Runninggal28 · May 2014

I'm so sorry you have to go through this. Sending positive vibes and hugs your way! I'm hoping you get some answers at your appointment.

knicoletti · May 2014

I read this earlier today and have been thinking about you all day long. I am sorry you are having to deal with the uncertainty and fears. I am hoping you get some answers very soon.

Jansheski · May 2014

I'm so sorry about the news you got today. How scary for both you and your husband. My heart goes out to you and I will be praying for your sweet daughter. I don't know much about this but please keep us updated!

lolapop2005 · May 2014

so, I have never posted I just follow along with everyone here. I'm due the 30th of oct. I feel compelled to post though. I have a 4 yr old son that has spina bifida. Your post struck me right in the heart, I know exactly how you are feeling and what you are going through. First off, our geneticist told us SB isn't genetic, the likely hood is perhaps slightly higher because of DH's occulta but we have no history of any SB in either of our families and our DS has the most severe form. It is just a freak thing that happens within the first 28 days of pregnancy. Please don't research right now, it will just cause more pain. Wait and speak to the specialists. spina bifida can sound terrifying but it is not a death sentence. Because it is all mainly issues with nerve damage (from the lesion on the spine) you won't know the severity of her SB until birth. Were they able to see her spine or identify a location of the possible lesion? My DS's is lower lumber, so down on his tailbone. He was diagnosed at our 20 week ultrasound with hydro, spina bifida, clubbed feet and a few other things were mentioned also. At birth he didn't have clubbed feet but did have hydro. He had surgery at 24 hours old to close his back and at a week had a shunt placed. They told us he would be paralyzed from the waist down but if you saw him today you wouldn't know anything was wrong with him! Idk if they mentioned it but the hydro is directly related to the SB so the baby should NOT have any mental handicap. Please feel free to pm me or comment here with any questions you have. At 4, my son walks, runs and has hit every milestone just as any other child would. We deal with some nerve issues but nothing horrible. I am so sorry, I was devastated when we got our diagnosis but everything went so much better than any of the Dr's told us.

IrishHoney123 · May 2014

I'm so sorry you and DH are going through this. Thoughts and prayers for you!

loopybaby · May 2014

I can't even imagine how difficult this must be for you. Sending thoughts and prayers.

suprsuz · May 2014

Sending prayers to you and family!

ashie0610 · May 2014

I am so sorry you are dealing with this. I'm sure it must be terrifying to hear something like that. I hope your discussion with the geneticist goes well.

ANGnJON · May 2014

I'm so very sorry to hear this news! Big ((HUGS)) to you! T&P to you & your family!

Glas43 · May 2014

Keeping your family in my thoughts and prayers.

c&bmama0911 · May 2014

Thoughts and prayers for you & your family

noellemari · May 2014

I'm so sorry you're dealing with this. T&P to you and your DH. And hopefully your upcoming appointment will answer all you questions/concerns.

Dubsgirlie · May 2014

I am SO sorry :-(

hippohat · May 2014

Many positive thoughts to you and your family, and wishes for a speedy wait over the next week. (hugs)

irisheyes317 · May 2014

T&P for you!! Hoping the wait until Wednesday goes quickly!

manateeliz · May 2014

I'm so sorry, and am sending you good thoughts. Hoping that the time will pass quickly and you get some answers from the geneticist.

BeckyH05 · May 2014

I am so sorry you are going through this. Thoughts, prayers an hugs to you.

Wsmommj28 · May 2014

Thinking of you guys and sending thoughts your way. I'm so sorry you're going through this.

WiFiMom2be · May 2014

I am so sorry! I am thinking of you and your DH, and I hope the geneticist can help ease your stress on Wednesday. Try to hang in there!

MrsL2B · May 2014

I'm very sorry. This hasn't been an easy past few months for you at all.

Mnerani · May 2014

ohdaddycat said:

Thanks ladies. Counting down the days until Wednesday. I don't know if I can wait that long. I'm going to love her no matter what.

This brought tears to my eyes. Of course you will, and you'll be a wonderful mother.

wildflower75 · May 2014

I'm so sorry to hear this.
Sending hugs and prayers to you, your DH and your baby girl!!!

archi35 · May 2014

I'm so so sorry to hear this - your family is in my thoughts! I hope us ladies can help give you some comfort between now and Wednesday.

shelly2314 · May 2014

I am sorry you both are going through this. You are in my T&Ps

shannonshare · May 2014

Sending lots of love to you and your husband right now. Your attitude about loving baby girl no matter what is so inspiring and shows how strong you are.

TheOtherJacobsons · May 2014

I am so very sorry to hear about the news. I know Wednesday is a long way away from now, but thankfully you have each other. You'll get through this.

tpete12 · June 2014

I am so sorry to hear this! I feel a bit of your pain as our baby has fluid on the brain too. I knew a little girl who was born with spina bifida and against all odds, and multiple surgeries, she was able to walk. Miracles do happen, and people make mistakes - this is what I am hoping for in your case. Keep us posted and you will be in my thoughts and prayers!