Hello ladies, we are going for our second geneticist meeting; this one is with connective tissue specialist. They are certain my son has a connective tissue disorder but don't know which one. I have been writing down a list of questions to ask and wanted to see if anyone had anything I hadn't thought about. Please share any thoughts or advice! I truly appreciate it!
Hello ladies, it is classic ehlers Danos.. Please share your experience Realistic Dream with your daughters. How old are they? What has helped them? His OT has recommended Murphy's rings for his hands. Do you know anything about them? He is 3.5 years old. I appreciate any advice you could offer. Thanks for listening!
Re: Thoughts?