My daughter's cardiologist has always suspected WS based on her pattern of heart defects. Our genetic testing is still pending, but they did a cath on Tuesday to attempt to balloon her pulmonary valve which they were unable to do. They came out of the cath lab saying that they found 8-9 different heart abnormalities and that they were 99% sure based on their findings that she has some form if WS.
They said she will need an open heart procedure soon to begin repairing things and as of right now her 3 cardiologists are trying to figure out what is the best course of action in her case. She's 5 months old.
I was just wondering if there were any WS moms here who could give some advice/direction. It seems that there aren't many hospitals/surgeons that deal with treating her specific constellation of defects.
No formatter is installed for the format bbhtml