So sorry to hear this. Lotsa prayers your way. Not sure if you are on Facebook but there are two great groups I've joined for heart mamas. One is mended little hearts and the other is called heart mamas. Such wonderful support and knowledgeable people if you have questions about heart stuff. I'll be thinking of you.
So glad to hear that the procedure went well...I will keep you guys in my thoughts and prayers as Liam continues to heal. I hope that he is able to be transferred back to his old NICU so that he will be closer to his family.
Sorry that you guys are on this rocky road, but so thankful that the procedure went well and he is stabilizing. Thank you for keeping us updated, you are in our thoughts.
PgAL (MC@7w 29/10/11 - lost you before we knew we had you)
My heart is aching just hearing this. I am so sorry, but Im thankful you are all at the best NICU. I continue to pray that Liam gets better soon. Stay strong little man. Keep us posted.
Yesterday was a really rough day for Liam and for me. They weaned him down on the ventilator and then decided he was ready to come off it and go to a Ram Cannula, but just a few minutes after getting him all switched over he desated so bad that he turned grey and stopped moving, all the nurses pushed me aside to bag him and rub him and bring him back. After that they tried a different nose ventilator but he still couldn't get enough air into his lungs and an x-ray showed that he had a partially collapsed right lung, so they bagged him some more and then decided he needed to be re-intibated. So now he is back on the ventilator and letting it do all the work. I don't understand why this is happening at all. Before his surgery he was on no breathing support at all for the last month. The Dr's say that he is still weak and will need a few more days before they try to ween him off of it again.
so sorry to hear about this setback. he just needs a bit more time to gain strength and it sounds like the docs are doing a great job with him. t&p are with you and baby liam
Re: please pray for Liam Updates in comments
#3 DD June 2014
CP December 2015
M/C 8/2016
Rainbow & Babe #4 EDD 7.28.18
Fingers crossed, thoughts and prayers and anything else coming your way. Hang in there, mom.