Hi. I intro'ed awhile back. My 4 month daughter has left aortic stenosis. The last time we saw her cardiologist was in January. Things looked promising. We saw him again on Thursday and had an echo. Turns out that there is a significant amount more leakage and her heart is enlarged. You wouldn't ever tell by looking at her. He is having us come back at the end of April to do another echo and to come up with a plan. She will for sure have surgery by the end of the summer. Possibly earlier if the echo shows that things have gotten worse.
I'm a wreck. I'm terrified. I can't stop crying. I'm trying to keep my mind off of it but I can't. My SO is so amazing. He is being so strong for us and for her and I feel like I'm not being strong enough for them. Can you give me your experiences, please? I'm thinking that it might help.