Special Needs

New here

I posted this on some of the other boards, but I figured I would introduce myself here. 

Last Sunday, January 11th---my DH was playing with DD and noticed some lumps on her neck. She does have food allergies, so he thought instinctively that she was having an allergic reaction---we went right to the ER. 

At the ER the pedi on duty didn't think it was an allergic reaction, but ran bloodwork instead. The bloodwork came back very concerning and DD definitely had anemia. We got transferred to another semi-local hospital for more extensive tests. They took more blood there and on Monday came back with a preliminary diagnosis of Leukemia. The did a bone marrow aspiration on Tuesday and discovered it was ALL (Acute Lymphoblastic Leukemia). Tuesday night we got transferred to CHOP, and we have been here since. 

My head is spinning since last week. The good/positive news is it seems right now that DD is responding to treatments and the chemotherapy is working. The doctors have told us that out of the leukemia's to get---this was the "better" one. Right now Reese LOVES her doctors and nurses, which makes me feel more relaxed about everything. I am on 6 weeks leave (and may push it to 12 weeks depending.) DH goes back next week. (We live about 2 hours from CHOP). I am hoping that we will be released in the next few days and continue chemotherapy as an outpatient. 
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My daughter is my hero.
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Re: New here

  • -T--T- member
    I'm sorry about your daughters diagnosis. I hear CHOP is an amazing hospital so I'm sure she is receiving wonderful care. It helps to have great doctors and nurses. Good luck to DD and your family!
  • CHOP Philly
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    My daughter is my hero.
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  • Welcome to our board!
    Baby Birthday Ticker Ticker
  • Welcome. A cancer diagnosis is
    always scary, but ALL is a much better diagnosis than AML. A family friend has a 4 year old son going through treatment for ALL. It is a long road, and we are "here" to support you.
  • I saw your post on the SAHM's board. I'm so sorry. Welcome to the board.
  • I've been following your story on the other boards. I am so sorry you are in he his position, but CHOP is an amazing facility, we see a neuro geneticist there. I am glad Rees is responding well and I hope her journey is just a smal blip in her life story. Welcome to the board.
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  • Welcome!

    So sorry you are here.  What a roller coaster ride you all have been on.  CHOP, as I am sure you have heard, is a wonderful hospital.
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  • So sorry to hear about this. I am also on the SAHM board you post on.
    Happy to hear she is responding to treatment well. 
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  • I'm sorry you have had a crazy awful week.  Please keep us updated, you kind of sound like you are in survival mode right now (not a bad thing) but if you hit that wall..we are here, and if you have a super awesome day..we are here!  
    Good luck and I hope she does amazing with treatment.
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


  • Prayers sent for a speedy, full recovery!
  • Welcome!
    WAY 2 Cool 4 School


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