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realisticdreams
member
And now a vent!
realisticdreams
member
Please see my update at the bottom of my, "haven't had one of these in a while thread."
SERIOUSLY, why do people do this!?
" I bet these drs could diagnose all of us with something if they wanted to."
SERIOUSLY, why do people do this!?
" I bet these drs could diagnose all of us with something if they wanted to."
Says a friend/cousin on facebook in reference to what the dr said about M. Is that supposed to make me feel better? I'm angry and frustrated and sad and upset and that's the best someone has to offer?
I've had people say similar stuff before and I just don't get it! It's not like she was accidentally diagnosed, we SOUGHT a diagnosis, because she is having issues! Yes i'm upset that we were misled before and that she does have EDS but i'm not mad at the doctor for telling me whats wrong with her finally!
I've had people say similar stuff before and I just don't get it! It's not like she was accidentally diagnosed, we SOUGHT a diagnosis, because she is having issues! Yes i'm upset that we were misled before and that she does have EDS but i'm not mad at the doctor for telling me whats wrong with her finally!
DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned
DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3
http://justthetipblogg.blogspot.com, The Neglected Blog.
This discussion has been closed.