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Feb 7 Update-Please pray for my son-20 wk ultrasound

jenandbrettjenandbrett member
edited February 2014 in June 2014 Moms
Feb 7 update. I'm sorry I haven't updated you all. This has been a very difficult time, we found out in one round of testing that Isaac has downs in addition to everything else. That was incredibly difficult to hear. That was over a week ago and were hoping to do the shunt procedure today (Friday) to attempt to save his kidneys and lungs. We were still waiting on one result but were going to go forward. My husband and I felt a total loss of God's peace as soon as we scheduled the procedure/surgery and after a lot of prayer and searching decided to cancel the procedure. I tearfully called the doctor and explained our feelings. She, it turns out, is a believer as well and had news of her own. The test result had come in and his kidneys are failing, almost completely. She said that confirms what God was telling us, the procedure is pointless at this time. Although heartbreaking to hear, it confirms how involved God is in this and how he is guarding and preparing our hearts. We will see the doctor next week, but without a miraculous healing, we are essentially in a waiting game for him to pass in utero or to go into labor. It is the most difficult thing I've ever experienced, but we have become so much closer as a couple and to Jesus that I am grateful for that part. There is a purpose for everything and I encourage each of you girls to enjoy even the tough moments with your babies and hubbies. Both are priceless treasures. I don't want any of you to read this and start worrying for your pregnancies. This is an incredibly rare condition and if you have no cause to worry- don't worry! Just enjoy your pregnancies and those precious babies! Update: Unfortunately, there has been no miraculous healing although we all know that can still happen. There is still no fluid around his body, but pools of fluid in his bladder, kidneys, and a little around his heart. The doctor is confident that there is a blockage (lower urinary track obstruction or Luto) that is not allowing him to urinate which is what replenishes fluid in the placenta. In the early stages of pregnancy, the mother’s body produces the amniotic fluid, but at this point, his kidneys are supposed to be recycling/producing the fluid. This seems to be the source of the problem. He also has a ventricle problem in his heart which she did not seem especially worried about and said could likely be fixed after birth. He is measuring near normal (praise God), just slightly on the small side. It was a long appointment, but the gist of it is that without fixing the fluid issue, he will not live. Praise God, she has a plan that could work to fix that. Tomorrow morning, she is going to drain a small amount of fluid from his bladder, to test it for chromosomal abnormalities and other issues. Assuming she can rule out genetic disorders and anything else that will prove unavoidably fatal, they are going to insert a sort of port/stint into his bladder which will drain the fluid from his bladder into the placenta, bypassing the kidneys. Then she can add some fluid and he will begin to recycle it himself. Additional fluid will also allow her to get a better view of any other problems there may potentially be. At this point, it seems that would leave us a bladder issue and heart issue to be dealt with after birth. We got one quick glimpse of his face, which usually isn't visible in the cramped space, and his hands were interlocked and clasped in front of his face in a prayer position. It was a sweet reminder that God is in that place with him. We are very hopeful the treatment will work. Thank you all so much for your prayers and support. They have meant so much to me! Exodus 33:14 says, “The Lord replied, “My presence will go with you, and I will give you rest.” He has promised that He will be with us and that is all we need. Old info: I had my 20 weeks scan yesterday and it didn't go well. There is almost zero fluid around our little boy. There is, though, fluid pooled in his kidneys and bladder where it should not be. That indicates non-functioning kidneys. There are also other less-alarming concerns and my midwife said, it doesn't look good. Without the fluid running through his body, his lungs will not develop and the placenta pressed so hard around him will not allow his body to grow. We are going to see a specialist, but they couldn't get me in until next Wednesday. I'm just in shock. Everything has been going so well. His heart rate is strong and I can feel him moving, so it's so hard to understand I may never get to hold him. I need to stop nursery planning and prepping my daughter to be a big sister. It's just all in a painful limbo right now. I'm resting in the fact that my son is in the Lord's hands and there is nowhere I would rather him be. There is a reason for everything and I trust The Lord with whatever his plan may be. This still hurts, though, and I would appreciate your prayers for all of us, but especially baby Isaac.
Trigger Warning (LC and loss) -- 
Married May 2008 
Beautiful daughter Alyssa born April 23, 2011 
Precious son Isaac born at 34 weeks in April 27, 2014 with Potters Syndrome Type 4 and Down Syndrome - trusted into the arms of Jesus after 3 hours.
Pregnant again! Due August 8, 2015 please be healthy, little one!

  (results on 2/4/15 showed no Down's and it's a girl!) Lilypie Maternity tickers
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