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Somewhat intro and question - Dandy Walker

kflynn81kflynn81 member
in Special Needs
Hi all,
At my 19 week a/s this past Monday our little guy was diagnosed with Dandy Walker. We sought out a second opinion and that doctor ended up admitting me to the hospital for pre e.... So we're faced with all sorts of decisions and no one can even give me a straight answer on the effects of DW on a child. Does anyone's child on here have it? If so, did you find out before birth? My LO doesn't move and is 2 weeks behind not sure if that's normal with DW, if you knew before birth did your LO have something similar? Any info would be most appreciated, TIA
Me: 33, Endocrine issues & FVL       DH: 32, Nothing 
NTNP 2009-2012         TTC since 2012:
  • Clomid, 2 IUI cycles, and 5 IVF cycles = BFN
  • FET #1   August 2013 = BFP!     EDD 5/11/14
  • Jack dx at 19w1d with Dandy Walker on 12/16/13
  • Severe Pre-e /HELLP set in Jack born sleeping at 20w1d on 12/23/13
  • FET #2 --July 2014  BFP!  ---  EDD  4/5/15

Jack has handpicked his sibling up there :)

My blog about IF and loss ... Kate's IF Blog

        Lilypie Angel and Memorial tickers 

                                                  

                                                                          Lilypie Pregnancy tickers


              Anniversary





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Re: Somewhat intro and question - Dandy Walker

  • realisticdreamsrealisticdreams member
    I think I know someone whose little girl has this.  Message me your email and I can give it to her. Big hugs.
    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


    Report Reply
  • kflynn81kflynn81 member
    Oh thank you!!! Sending you my email now!
    Me: 33, Endocrine issues & FVL       DH: 32, Nothing 
    NTNP 2009-2012         TTC since 2012:
    • Clomid, 2 IUI cycles, and 5 IVF cycles = BFN
    • FET #1   August 2013 = BFP!     EDD 5/11/14
    • Jack dx at 19w1d with Dandy Walker on 12/16/13
    • Severe Pre-e /HELLP set in Jack born sleeping at 20w1d on 12/23/13
    • FET #2 --July 2014  BFP!  ---  EDD  4/5/15

    Jack has handpicked his sibling up there :)

    My blog about IF and loss ... Kate's IF Blog

            Lilypie Angel and Memorial tickers 

                                                      

                                                                              Lilypie Pregnancy tickers


                  Anniversary





    Report Reply
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  • algalphysalgalphys member
    My cousins son has it...I can also send her your email you'd like to pm as well?
    Report Reply
  • kflynn81kflynn81 member
    Yes, thank you!! Pm'ing to you now!
    Me: 33, Endocrine issues & FVL       DH: 32, Nothing 
    NTNP 2009-2012         TTC since 2012:
    • Clomid, 2 IUI cycles, and 5 IVF cycles = BFN
    • FET #1   August 2013 = BFP!     EDD 5/11/14
    • Jack dx at 19w1d with Dandy Walker on 12/16/13
    • Severe Pre-e /HELLP set in Jack born sleeping at 20w1d on 12/23/13
    • FET #2 --July 2014  BFP!  ---  EDD  4/5/15

    Jack has handpicked his sibling up there :)

    My blog about IF and loss ... Kate's IF Blog

            Lilypie Angel and Memorial tickers 

                                                      

                                                                              Lilypie Pregnancy tickers


                  Anniversary





    Report Reply
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