I saw you mention on a previous post that your child has pulmonary vein stenosis. I was just wondering if you knew of any good resources on this topic, or have any useful info to share?
My daughter is being sent to a cardiologist to be checked out for this in two weeks, as she has a strong family history of aortic stenosis, as well as pulmonary stenosis, in her birth family. The only info that I have is that her birth father and her two biological half sister all have this, and one of the sisters had to have a valve replacement. I don't know much about it other that what I googled. She currently appears to be healthy and is only presenting with a murmur, but her ped is concerned because of the family history and wants to be followed by a cardiologist.
Is there a wide range in severity with these types of issues, and what are the treatment options if treatment is necessary?
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