Input/experiences with esophageal atresia?

JessieWads

Any one have experience with esophageal atresia in any of their kids? My baby B was born with it - and her drs say its very common in B's (they aren't sure why). She's 5mo now - and luckily other than her month long recovery in the NICU we haven't had any issues (knock on wood) - but I would love to hear from other parents who went through this and what it was like long term. Her dr's have given us a few things to look out for in the future eating wise - but what about health wise? Did you find that child was more prone to being sick? did they not gain weight as well? Any input or shared experiences would be great. My internet research has done little to educate me on the long term.