Frustrated! Little vent..*updated*

J&D2007

Been estrogen priming for 4 days now (EPP) And ganirelix for 3 days. Due to start AF this Saturday and stims next thursday. Of course, it didn't cooperate. I started today instead. So, I'm wondering if stims should start now on Sunday (cd4) instead of waiting til next thurs (cd8). C.crm only starts stims thurs-sun so the other ads aren't an option (frustration #1). So, I called them last night and asked for them to call me in the morning to discuss. Called again and asked for a return call this morning. No One calls back from there and it's SO incredibly frustrating to me!! I would need to call my local RE in the next hour for an u/s for tomorrow if we moved everything up. It feels so lonely and out of my control when I can't speak to anyone ever. I hate it! Anyone know if its a problem to start stims on cd8? It seems so late to me with everything I read. TIA! ** (iPad doesn't do paragraphs ) Finally a call back at 7pm. When I asked Wth it takes so long to get a call back she says she must have misinterpreted my message (I called 3 times and said call me back ASAP) Anyway, she says it is up to me when to start stims. I really don't like that answer. I ask if its best to start right away on cd3 or if its best to take estrogen for another week then start stims (on cd8). She says 'there is no best', it's just whatever I want. So, now, in my infinite wisdom of ivf protocols (I'm being facetious here), I have to decide what is best. I'm thinking a suppression check u/s Saturday and stim start Sunday? She said to get an u/s tomorrow but that is not happening as they called me back at 7pm!! I am really not sure what decision to make here and surprised that it really doesn't matter when I feel like starting. Thank you for putting up with my mini meltdown today:-) love you guys!

DoublePortion

I'm so sorry you're not getting a response! It is incredibly frustrating to feel like you're having to coordinate your own care when you're paying the clinic tons of money to do it for you!! I hope they call back asap. Do you think you could ask your local RE to put you as a work-in just in case you need an ultrasound, but have them call you tomorrow to verify? (In case their phones are on answering service tomorrow.) ((hugs))

J&D2007

DoublePortion said:

I'm so sorry you're not getting a response! It is incredibly frustrating to feel like you're having to coordinate your own care when you're paying the clinic tons of money to do it for you!! I hope they call back asap. Do you think you could ask your local RE to put you as a work-in just in case you need an ultrasound, but have them call you tomorrow to verify? (In case their phones are on answering service tomorrow.) ((hugs))

Thanks for the support and not calling me looney. Sometimes I feel like I'm being a demanding b*tch of a patient. I am thinking of calling my local clinic but I don't know if ccrm will even consider moving my schedule as they don't seem very flexible! Thanks!

JSM0801

WTF is going on with that place?! I feel like you have had the worst experience with them so far. I know I have asked you this before, but can you request to switch nurses? There is no excuse for the lack of communication and not responding to you in a timely manner. I don't think I have ever waited more than 2 hours for my nurse to call me back. If you can't switch, at least you should express your disappointments and concerns and let them know your expectations. As for when you start stims, I am so confused. Why will they not let you start until cd8? I never heard for this Thurs-Sun thing. Did they give you any kind of logical explanation for this? One of the things I loved the most while cycling with them was that everything seemed to be totally individualized, based on my own personal cycle rather than the whole batch cycle thing. This makes no sense! They are there around the clock 7 days a week, so why would it matter which day you started? I would definitely think you should be able to start on cd4. That's when I started stims and seems to be the norm. I am so sorry you have had so many problems with them. This is not how your experience should be, and you are paying way to much $$ to be treated like this! Please update when you talk to someone!

liz4paws

Man, I felt my blood starting to boil reading this. No, you're not looney. You're paying a LOT to be a patient there and it's unacceptable. I don't think you're expecting too much AT ALL.

J&D2007

JSM0801 said:

WTF is going on with that place?! I feel like you have had the worst experience with them so far. I know I have asked you this before, but can you request to switch nurses? There is no excuse for the lack of communication and not responding to you in a timely manner. I don't think I have ever waited more than 2 hours for my nurse to call me back. If you can't switch, at least you should express your disappointments and concerns and let them know your expectations. As for when you start stims, I am so confused. Why will they not let you start until cd8? I never heard for this Thurs-Sun thing. Did they give you any kind of logical explanation for this? One of the things I loved the most while cycling with them was that everything seemed to be totally individualized, based on my own personal cycle rather than the whole batch cycle thing. This makes no sense! They are there around the clock 7 days a week, so why would it matter which day you started? I would definitely think you should be able to start on cd4. That's when I started stims and seems to be the norm. I am so sorry you have had so many problems with them. This is not how your experience should be, and you are paying way to much $$ to be treated like this! Please update when you talk to someone!

Thank you so much for this. I feel like crying right now and I'm not a crier. I feel like this is so out of my control. I cannot speak to anyone and I get no answers. I have waited again almost 24 hours with still no call. Now it's too late to get into my local RE in case I get a green light to start early. I haven't asked for a new nurse, but I am going to now. I can't believe you have ever gotten a call back that quickly, I just assumed this was the way they operated. No idea why they say stims start thurs-sun, it's 'just what the lab says for them to do'. I feel like I'm paying all this extra money and am not getting any individual care at all. I could have gotten this here. I'm so ticked off.

J&D2007

I'm wondering if the starting stim thurs-sun thing is because I'm scheduled a few days before thanksgiving and they don't want to have to be there? Or maybe it's something new? I don't know, I just don't understand it. I feel like I'm in a batch cycle which I went out there to avoid.

Mrs.McIrish

I'm so sorry. The only thing I can think of is that. Your nurse is out and no one checked her vm. While is unacceptable of course!! For what you are paying to go there, it is shocking that you can't get a call back. Is there an emergency line?

Sophistikitty

I am totally new there (haven't even had my ODWU yet) but I was just wondering if there is any way to get a quicker response through the patient portal???  I haven't used it yet but thought I would just put it out there in case it helps.  I am so sorry you are going through this

chucktgirl

That is crap, J&D! Try calling them again and telling them you'll hold to speak with a nurse. Remember, they are two hours behind! I was tossed around their auto answer system for about 6 minutes today (I checked the time) before I finally got to a human. Then she just transferred me to a voicemail. I left a message, and they returned my call about two hours later.

I don't know anything about a priming protocol, since I've never done it, but I would hope they would schedule around you, especially since you're paying the big bucks. Unfortunately, this sounds like another example of them not providing individualized care. I am SO sorry.

J&D2007

As far as I know, there is no quicker way. They say not to leave messages through the patient portal because they don't check it. I've called 4 times now I think. The last time was two hours ago and the nurses were in a meeting together and they'd call me soon. Whatever. Not gonna happen today I guess. Even if the nurse calls me, there is no way she can talk with my dr and get back to me. It's only been 24 hours, what can I expect right? Glad it's not a true emergency as I'd be dead by now;)

Sophistikitty

OMG, this is ridiculous and completely unacceptable!  I am getting so upset right now!!!! >:P

Sending you huge hugs as that is all I can do

Mrs.McIrish

That is bullsh!t that the start date is up to you!!!! Can you ask to talk to a doctor tomorrow? If not, I'd start stims on cd4, not cd8.

J&D2007

Thanks, Mrs McIrish for your input. I will call tomorrow and ask if my dr is able to call me back. I'm guessing she will say the same thing, that it just doesn't matter to them and it shouldn't make a difference. I feel like I should just trust them and not over -analyze, but that's what I do best! I'm leaning toward starting stims Sunday on cd4, too. Thanks for backing me up on that decision! This change is really going to screw up my work schedule that I so carefully planned. Oh, well.

PrettyAccountant

I don't know anything about the clinic but I wanted to send you hugs and let you know that your nurses behavior is bull. I am getting so pissed off just reading what they are putting you through. Like IF isn't bad enough - you would think they could be a little better to deal with.

hmz819

I'd be even more pissed if they told me I can pick when I want to start stims! You're paying them because they are supposed to be the best and should manage your protocol accordingly! You can't be the first patient who had AF come early!

If you don't mind me asking who is your doc and nurse? Pm me. I'm just curious as we are considering this clinic.

J&D2007

hmz819 said:

I'd be even more pissed if they told me I can pick when I want to start stims! You're paying them because they are supposed to be the best and should manage your protocol accordingly! You can't be the first patient who had AF come early! If you don't mind me asking who is your doc and nurse? Pm me. I'm just curious as we are considering this clinic.

YGM!

Km672

I seriously don't even know how you dealt with this mess!!!

I hope the rest of your cycle goes perfectly... This while ordeal stressed me out when I read it!!

Please do a little extra something nice for yourself?