Xp deaf and bad at sleeping

tesskerr

Hi! I am not sure if this is the right forum to ask. A friend of mine has asked me for some help, she is no good with the internet.

Her daughter is 7 months old, and was born deaf. She was supposed to have an all over body assessment, but has somehow slipped through the cracks, and is awaiting a referral to a pediatrician. (In my country you just see your GP, anything theory can't do, you have to go on a waiting list).

My friend is concerned about the other symptoms her baby has, mainly sleep related. She has consulted a sleep specialist, whom thinks it is most likely medical, so back to the waiting. 

If anyone has any advice while my friend waits, or any ideas what may be wrong, I would really appreciate it.

These are her symptoms, deaf (not 100%, but cannot hear without a hearing aide)

Excessive sweating. Mainly night sweats, soaks through clothes, sheets etc.

Has difficulty staying asleep. She is not crying because she wants picked up (picking her up doesn't seem to soothe her). She wakes about every hour, very upset. My friend has a 2 year old, who has reflux/allergies/terrible sleeper. I think people easily dismiss my friend as just not sleep training her new daughter well, but this child just can't seem to stay asleep. Its like she wants to, and cries with exhaustion.

She will seem to be in a deep sleep, then her eyes will just pop open.

Arches her back a lot, like she is in pain. she did have reflux, and was on meds, but off them now because all of the reflux symptoms are gone, and seems happy during the day. She will nap during the day, but for no longer than an hour.

Tongue tie and lip tie. Possible hip problems (may need a brace).

Also was born in the 80th % for weight, now I think she is in the 8th? Gp is concerned she is no longer eating enough, and friends bm supply has suffered, and drs want friend to take meds to boost supply. Can't really supplement with bottle as baby won't take it, probably because of mouth ties, again friend won't get to see a pediatrician for about 7 more weeks.

My friend has hyperthyroidism (mild), and her Nana has hypothyroidism, so friends thought there might be a link with the sweating. As far as I know, baby has had no blood tests or anything.

Again, any help would be appreciated. I get the feeling the deaf thing might be quite unrelated to the sleeping thing. My only thought is, maybe without her hearing aids in, she gets freaked out by it being so quiet? But that just seems a but silly.

jamu

I don't have any advice, but I'll be praying for answers for your friend.

tesskerr

@jamu thank you. I have asked on a few other boards, return of the reflux may be the problem. I hope my friend can see a Dr soon.

smfdjo

I don't have any advice.  But prayers to your friend this has to be so hard.  

haileyq

My first thought was thyroid