Sooo we saw the neurosurgeon and he does not think that P's cord is re-tethered, he also wanted us to see a neurologist (which we already have)..and their's didn't have an opening until late November (she's an MD specialist..insert me freaking out here..) I've got a kid whose hysterical everyday and it's breaking my heart. So i called our neuro and they had a cancellation for this morning.
We have to get 2 new MRIs (brain & cervical), go to a neuromuscular clinic for EMG testing, rheumatology since their is a pain factor and a ton of lab work. Really? Again? I feel so defeated that we are playing the diagnosis game again, we did it, a lot of it, for both girls for a long long time. I was glad to be done with it, I feel like she's a guinea pig again. And she's already showing behavioral issues in conjunction with the few appointments we've had to do in the last few weeks, so this should be SUPER FUN!
Part of me wants to forget I took her today and pretend like everything is okay, except we are far enough into this now for me to know that isn't even a daydreaming options.