Gestational Cataracts

KellyScott04

I'm a FTM and a total train wreck. Not only do I over worry about everything with this being my first child, he was born with cataracts. DH and I are doing well but definitely have our bad days where you think "why us and why our little guy". I know there is much worse out there but this is our struggle and when you sit with it at home alone, you feel like you're the only one in the world that's going through this awful journey. Our DS  has had 2 surgeries now, one for each eye, to remove the cataracts and has healed well. He got fitted for contacts and we had to learn how to put them in and remove them which was a challenge but the least of our worries. I have NO problem forcing myself through that tedious process for a year. At a year he'll get a permanent lens implant in both eyes and it should be uphill from there. However, today was horrible. We went in for a check up and found out that the pressure in his eyes was high which we were given more drops and oral medication for and of course I'm freaking out bc if the pressure doesn't go down, it will require more surgery for our little guy. It just makes me so sad. Even if he most likely will not remember this, my heart can't help but ache for his eyes. *sigh. Is anyone else going through a similar experience? I'm really starting to get depressed over here. 

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jensriot

No advice, but big hugs. I had a corneal transplant as an adult and can't imagine how tough eye surgeries must be for a tiny guy and on you. Good luck, it's absolutely amazing what can be done for the eyes.

TradeMama

@janapettus may have some wisdom for you