Preemies

Heartbreak and Disappointment

For all of those that went through IF and m/c do you feel some of the same emotions in the NICU? Yesterday when they told me for the 4th time that LO couldn't come home I comp fell apart just like when we had a failed IVF and when I had my early m/c. The disappoint was so intense I couldn't shake it and I cried on and off all day. I also don't think it helped that the resident doesn't have an ounce of humanity.
6 m/c
Anovulatory cycles, increased Synthroid Diagnosed Sep 2010
Natural cycle Dec 2010 BFP M/C 6 1/2 Weeks, D&E Jan 2011
1 Clomid/Ovidrel BFN May 2011
Natural cycle Aug 2011 BFP M/C 4 Weeks
1 IUI Sept 2011 BFP M/c 7 weeks
Provera Dec 2011 BFP M/C 3 Weeks
DQ ALPHA HLA MATCH, High NK Cells Diagnosed Dec 2011
IVF March 2012 BFP m/c 4weeks 5 days (IL, Prednisone)
IVF#2w/DS July 2012 MEGA FAILURE BFN (IL, Dexamethasone)
Diagnosed No real HLA Match, DQ Beta Triad, High TNF, Low NK Cells
Oct 2012 Natural Cycle m/c 4wks (Lovenox, Prednisone) 
Went to Beer Center- high tnf, low lad, implantation failure
Nov/Dec 2012 LIT Treatment
Dec 12 Humira
Jan 2013 BFP
Humira,LIT,Prednisone, Lovenox, IVIG, Baby Aspirin
Miracle Born August 2013 Premature

Yours doesn't have to be a sad story



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Lilypie - (ugiy)


Re: Heartbreak and Disappointment

  • I am so sorry. It sucks when medical professionals aren't compassionate. I hope that your LO is able to come home soon. It's been a long road for me, with failed DE cycles, a very high risk pregnancy and NICU time, but we are nearing LOs 4 month birthday and now finally things are looking up. It does get better, I promise. Best wishes to you.

    image
    DOR and AMA
    2/12-5/12: 4 IUI cycles = all BFN;
    7/12: DE IVF # 1 (with ICSI)- 20R, 16M, 14F, 5DT of 2 blasts; 6 frosties = BFN;
    Lupus anticoagulant initially high, then found to be normal on hematology consult;
    Follow up testing in September all clear;
    Started synthroid for "high normal" TSH;
    FET # 1- late October 2012- BFP on FRER; beta # 1- 21(low), beta # 2- 48 (still low), beta # 3- 132, beta # 4- 1,293; beta # 5- 5,606; last beta- over 100,000. First u/s 11/21- heard heartbeat
    12/12- Officially an OB patient!
    Level 2 ultrasound at 20 weeks shows vasa previa and VCI
    Referral to MFM and mandatory c section for delivery
    Beautiful baby girl born at 34 weeks
    Finally home after 15 day NICU stay!
    Trying for sibling: FET # 2- May 2014; beta 5/31, BFN
    FET #3, early July 2014; beta 7/14, BFN
    DE IVF # 2- August 2014; 14R, 13M, 11F, 5dt of 2 blasts (3 AA), 5 frosties = BFN
    FET #4- December 2014, yet another BFN

    Dr. KK work up shows borderline uterine blood flow, elevated NK cells, and MTHFR mutation (homozygous for c677t)

    Added baby aspirin, prednisone, supplements, Metanx, and intralipids

    Switched to large clinic for final attempt; had endometrial receptivity testing in January; FET March 2015 = yet another BFN

    Likely OAD- NBC

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  • Yes!!! You would think that since we dealt with IF and a loss, we'd be spared the NICU experience. I have feelings of resentment, bitterness and jealousy towards pregnancy women (for actually having a third tri), moms taking their babies home from the hospital after a measly two days and moms and dads out and about with their infants, because I'm sure well be quarantined after she finally does get to come home. I actually have a counseling appt scheduled for another week or so when my therapist comes back from mat leave!
  • I cried a ton in the NICU and at home.  Thankfully one of the NICU nurses was a friend of mine (who referred me to my RE), and she knew when to grab the tissue.  I also remember the disappointment when we were told she couldn't come home.  We had gone to spend the night with her, had her going home outfit, and then were sent home because she wasn't ready.  It was horrible. ((((((hugs)))))
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Married Sept 2008
    ~~TTC Nov 2010~~

    IUI #2: 1/21/13-100mg Clomid(CD3-7)(8M post wash) + progesterone= BFP!! EDD 10/13/13
    Beta #1=81.1 Beta #2=134.5 Beta #3=58.1 #4=2369 WTH?!-Not sure if its viable
    2/21/13 - Went to RE expecting the worse and saw the flutter of the heart.To God be the Glory!!
     
    5/29 - It's a Girl!!
    8/21/13 - Naomi born at 32w3d by csection due to Pre-E
    ~~PAIF/SAIF Welcome~~ 
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    imagephoto A789AD50-EAFE-4955-A617-02358EF02DBE_zpsbxkk1n87.jpg
    My Wonder Woman!

  • Keep your chin up! Your day will come very soon. Stay focused on the blessings in your life - your beautiful baby! And don't focus on the negatives. That's the only way I got through our 37 days in the NICU. It seemed like months but once it arrives, it'll be a thing of the past.
    Lilypie Premature Baby tickers

    imageimageimage

    Pregnancy #1 EDD 1/20/13, D&C for unexplained miscarriage at 12w
    Pregnancy #2 EDD 8/28/2013, Carson was born on 6/28/2013 at 31w - spent 37 days in the NICU
  • Yes!!! You would think that since we dealt with IF and a loss, we'd be spared the NICU experience. I have feelings of resentment, bitterness and jealousy towards pregnancy women (for actually having a third tri), moms taking their babies home from the hospital after a measly two days and moms and dads out and about with their infants, because I'm sure well be quarantined after she finally does get to come home. I actually have a counseling appt scheduled for another week or so when my therapist comes back from mat leave!

    No experience with IF, but these are still my feelings when I see pregnant women in their third tri or parents taking their newborns home. I hope it does get easier for all of us and that your LO comes home soon!

    Lilypie Premature Baby tickers
    imageimage
  • ((((((hugs))))))

    As other PPs have said, that last stretch of the NICU feels like the longest.  I know how hard it is.  T&Ps that she will be home sooner rather than later. 
    TTC Since July 2008.
    Me: PCOS DH: Low everything (MFI)
    Clomid with TI x 3 2010 BFN
    Clomid+IUI+Ovidrel 2010 BFN
    IVF w/ICSI #1 2011
    9/8/11 Beta #1: 2082!! 9/19/11 Beta#2 34,689!! U/S 9/22/11 HR 127! 11/8/11 HR 150! 12/6/11 HR 136! 12/14/11 HR 139! Born at 26w2d on 2/4/2012! After 83 days in the NICU, Adalyn came home on 4/26/12!
    FET 1 3/2013 BFN
    FET 2 5/2013 BFN
    Lilypie Premature Baby tickers
  • Keep your head up mama!  Your day will come.  I understand the roller coaster of emotions that come along with a NICU stay.  And when DS was supposed to be discharged things got completely screwed up and I lost it on the resident, and they acted like it was no big deal.  Well excuse me, I know you deal with this every day and it's not big deal to you, but after 33 days I want my baby home!  It just blew my mind how they were like, well, we can get this all done and you can take him home later in the week.  NO F-ING WAY!  
    Welcomed our baby boy Henry on March 15, 2013 (7 weeks early!)

    Baby Birthday Ticker Ticker

    TTA until 2014


  • ((HUGS)). It is difficult, and the professionals around us can make a big impact. Anna was born at 26 weeks after her big sister was stillborn at 31 weeks. Anna also sustained severe brain damage. Everything that happened to us is "unexplained." I struggle with envy, resentment, disappointment, and grief. Some days are much harder then others, but some days are much better than I predicted they could be when I was at my lowest. Keep holding on!


      Our Angel Patricia born sleeping 3/30/12 at 31 weeks
    Our Fighter Anna born early 1/8/13 at 26 weeks
    Hoping to bring home #3 due 9/9/15
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