New here, I've been reading for a while so just thought I should pop out of the shadows.
My husband and I lost our first born son just over a year ago. We nicknamed him "Cruz". At the 20wk scan, he was diagnosed with a right sided congenital diaphragmatic hernia (R-CDH) and only given a 10% chance of survival. He started off really well after having his repair surgery, then spent 10 days on ECMO life support, recovered, discussions about going home happened.Cruz was eventually diagnosed with a congenital heart defect, tracheomalacia, right lung hypoplasia among other issues. He spent his 4 months here in the ICU, he had some great days and some not so great days. We live in London, so our time was mostly spent at the Great Ormond Street Hospital for Children.
Medically, everything with Cruz was simply a series of unfortunate events and all the genetic tests came back normal on all of us. The pregnancy was hard, I had HG, eventually would up hospitalized for about 10 days on IV fluids, had FETO surgery to increase Cruz's odds of survival, developed polyhydramnios so had about 1.5 litres of amniotic fluid drained.
We've made a lot of progress in the past year and I've finally gotten to the point of coming to terms with his death and we're slowly broaching the topic of possibly trying for another child.