It's a rough one

Throw3ks

The doctors and nurses have stressed some days are good other are bad. Today is a bad day. Ella is doing ok. Today is her one week "birthday". She was on room air yesterday and after 24 hours she was out back on her cannula due to 5 Brady's. which is ok by me. now today she hated kangaroo care. I feel like she was so stressed yesterday and now today she just hates me. She is tolerating her feeds. her temp is .2 degrees higher then normal. Ughhhhh I feel lost today.

kelly422

Hang in there - she doesn't hate you!  

thishappyhouse

So sorry you guys had a tough day.  Hoping tomorrow is much better

MinaE01

She absolutely does NOT hate you! She's just having a hard time, and needs you more than ever. You are on the NICU emotional roller coaster. Do you best to hang on and try to be as positive as possible. GL!

ludali

HUGS!!! My DD has been home a month and I randomly have the she hates me thoughts... but its not true! You are doing everything you can for her and she can feel it. Head up Momma!

vsalt31

You're doing great! They do have 1step back for every step forward. My son also hated (Brady's glore) during kangaroo care. She will come around. Wishing you a short & sweet stay.

Throw3ks

Thank you everyone. They called her doctor in because I was having such a hard time today. She did a full exam on Ella and no problems or issues. Maybe it's just a hormonal day for me. I hope everyone and your LOs are doing well. This is a tough journey.

anna2089

It's true those bad days happen, you see your baby in distress and all you want to do is fix it. You are restricted bc of the fact that your baby needs help and you have to rely on nurses. Tommarrow will be a better day! My son did the same thing, he was off cpap on nasal cannula, off completely and then right back on within 24 hrs, it's completely normal. My advice to you that i Learned the hard way is never to get my hopes up, nurses were so conflicting and seeing him make so much progress and then digress was aweful. Even though it seems like they are digressing they are one step closer to coming home! Stay strong momma soon you will be holding your baby at home!

Throw3ks

@anna2089 you are so right! I think I was just hormonal today and lost sight of the bigger objective. Thank you. :-)

LeLe9

Yes it is a tough journey.  Praying that a better day is coming tomorrow.  Her name is beautiful. 

jbranden12

Hope today is better! Some days are just rough. We had a rollercoaster with the vent/cpap and then the cpap/cannula/room air. Some days she loved kangaroo care, some days she didn't handle it well (which I didn't handle well). Remember, it's all temporary. Hang in there!

ashleymarie512

Hoping today is a better day!! I have those days too...just had one last week as a matter of fact! Breathing is our biggest struggle and it can be so frustrating. Be sure to let yourself feel whatever it is that you're feeling and don't hold it in. Take care!

direy25

Hang in there, it will get better, even though it may not seem like it now. I hope today was a better day for you.

punky917

Those bad days are the worst. It's like no matter how many good days our babies have, the bad days feel like they are never going to end. Hang in there, mama!

flerlgirl

I'm tardy to this party but hang in there, mama! It's so rough going from room air to cannula and back and forth. She doesn't hate you! She is just trying to figure out all of this craziness and soon she will be ready for cuddles again. I hope the last couple of days have been better!

+ASH+

She absolutely does not hate you! She's just adjusting to so many sensations and stimulation, it's hard for her to process it all. Be strong - she'll be snuggling into you before you know it . *Hugs*

aliwisewoman

I totally understand this! I was feeling so scared and helpless yesterday because Dominic had not had a bowel movement. It had been 5 days since he was delivered and they had given him a suppository which didn't work. He wasn't tolerating his feeds well, they assumed because he didn't have motility in his digestive system. Point being- I was sick with worry last night. Today I went in and he finally pooped and they both had great days! Things change from visit to visit, even in the same day. Hope tomorrow is a better day!

Brummy14

::hugs:: DH and I were just talking about how nuts those days were -- when I didn't know if I would be able to kangaroo DD2 for the full hour (or more), or only 5 minutes because she'd go all desat crazy. She had events well into week 36 and 37 adjusted -- when we were told to expect them to all but stop by or before week 36. She was taken away from me more often then I told them to take her after a full kangaroo session. It broke my heart, every time.

There's nothing that will make being in it any better, I know. But, just know that months and months from now, you'll look back and wonder how the baby you have now is even the same one who struggled so hard. These guys make amazing progress over such a short period of time (but, man, those NICU days will always feel like the longest, longest days on record).