Hopeful..am I setting myself up for disappointment?

laurding

Hello, I have posted here many times before in our saga. DD was diagnosed with congenital hydrocephalus that was downgraded to ventriculamegaly shortly after. Since birth she has gone through many tests, and lately genetics have honed in on md. However, each subsequent test comes back negative. We went for genome sequencing last month and were told 3-6 months for results. In the beginning of July, DD had a few seizures that led us to neurology. Previously, we had worked with neurosurgery, even though she didn't' have the need for a shunt surgery. With the seizures, we were referred to neuro, as well as neuromuscular, who we saw today. If you have read this far, thank you! So, today, the dr. Told us that she doesn't believe that DD's issues align with MD. But rather a muscle myopathy, which would be great news. This has always been my instinct. However, I am afraid to feel excitement, because, at this point, it is just speculation. She is an expert in this field, but we have had so many others tell us otherwise, with, really, no real proof. To be honest...I am excited. This is what my gut has been saying all along. And that is what scares the heck out of me!

Assembly_Reqd

Hope is a bitch who keeps dying and then miraculously resuscitates herself around my parts. I hate her. She is a bitch.

I think you can be hopeful. It's SO hard not to be. Human nature I guess.

I hope your Hope turns into Reality. oh. wait....