May 2013 Moms
aliciablair22
member
Expecting Logan James (Spina Bifida) May 2013. Follow our journey: http://littleloganjames.blogspot.com/
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The baby does have spina bifida
aliciablair22
member
I just got back from the
perinatologist. When I first got there they did a long ultrasound. The
baby wasn't really cooperating very much. But they did see the
"bump"that they called it. The Dr. said it was low but couldn't say
exactly where. The Dr. said the baby has the classic lemon and banana
signs in the brain.
The baby's legs were moving but he didn't know if that is involuntary
or not. They did an amino. I didn't get much time to think about it. It
happened really fast. The Dr. said it will check for chromosomal
abnormalities and he said it would see if the fluid from the spine is
leaking (I think, something to that effect) to see if it is open or
closed. He thinks it is open.
We will wait for the results, then he will make the referral to the
neurosurgeon. He said they may do a fetal MRI but maybe not depending on
what the neurosurgeon wants to do.
He said the baby will have surgery after he is born. They will transfer him to the Children's hospital in Omaha.
He said I still see my regular OB and see him also. I have gestational diabetes so they will keep an even closer eye on me.
The Dr. was nice. I am 18 weeks 6 days so it seems there are a lot of
unknowns. The baby is definitely a boy. His name will be Logan
. I feel at peace now that I know what it is. I have this sense of calm. Of course this isn't the news I wanted. But I already love this baby so much. I want to get to know everyone else more on here. I can't thank you all enough for what you have done for me so far!!! Any other resources you can point me to? Do we have any facebook groups or anything? I am thinking of starting a blog. Just to keep track of my thoughts and baby's progress. I don't know.
Sorry for the rambling. Trying to think of everything the Dr. said.
. I feel at peace now that I know what it is. I have this sense of calm. Of course this isn't the news I wanted. But I already love this baby so much. I want to get to know everyone else more on here. I can't thank you all enough for what you have done for me so far!!! Any other resources you can point me to? Do we have any facebook groups or anything? I am thinking of starting a blog. Just to keep track of my thoughts and baby's progress. I don't know.
Sorry for the rambling. Trying to think of everything the Dr. said.
Expecting Logan James (Spina Bifida) May 2013. Follow our journey: http://littleloganjames.blogspot.com/This discussion has been closed.
Re: The baby does have spina bifida
First Son - born 2013
Third Son - due June 9, 2018
Me:40 AMA, DH:36 0% morph, TTC#1;
BFP#1 4/2011, MMC 6/2011 11wks Trisomy 13;
BFP#2 11/2011, CP
FSH: 17.9, AMH: 2.2
IVF#1 w/ICSI: ER 4/3: 5R,4M,4F
ET 4/6 All 4 (1-8A+, 2-8A-, 1-3A) BFP#3
Two weeks of beta hell = Blighted Ovum
IVF#2 Aug/Sept: ER 8/27: 4R,3M,3F
ET 8/30 (1-8A+, 1-6A+)
Beta#1 9/10: 350; Beta#2 9/12: 796; Beta#3 9/20: 9155
Expecting Boy/Girl Twins! My babies were born 4/23/13 at 36w1d!
DH: 35
DD #1: 6/1/2013
EDD #2: 6/7/2017
I'm so sorry. You do sound incredibly strong, which is definitely what Logan needs. I hope the doctors are able to determine the full scope of what they're dealing with quickly. I've heard that spina bifida can often be corrected in utero, so I will keep you, Logan and the rest of your family in my thoughts and prayers. (((Hugs))).
There is a facebook group, although I can't remember the link or where it's posted. There are some threads about it if you scroll back through the posts. It's probably quite a few pages back.
I agree. You sound very strong, it is inspirational! T&P to you and your family.
How far away will you be for delivery from the children's hospital where he will be transferred?
I'm sorry for your news but you'll be in my prayers...
And I love the name Logan.
Currently Reading: Don Quixote by Miguel De Cervantes
Check out my Team Green baby names! P.S. I'm not serious with any of the names
My BFP Chart
BFP 9/7/12, EDD 5/15/13
MW interview said 5/17/13 and changed back to 5/15/13 after first visit
I am so sorry that you got this news. It sounds like the doctors have a good plan for you and Logan and I'll be praying for all of you.
The Daily Nugget
Cycle 12, IUI #1 - 33m post wash 10/15/10 = BFN
Cycle 13, IUI #2 - 15m post wash 11/16/10 = BFP, missed m/c, D&C 1/3/11
Cycle 15 - 18, IUI #3-6 = BFN
Cycle 20, IUI #7 = BFP!, missed m/c 9/14, D&C
DE-IVF Aug. 2012: ER 8/30 11R, 7M, 4F; ET 9/4 returned 2
Beta 9/18 #1-820, #2-1699, #3-7124
10/1 1st u/s measuring right on track, 125 bpm
I am sorry you are going through such a tough time right now. I wish you all the strength you need. You have the information and the doctors will do everything that needs to be done. I will keep you and family in my prayers.
EDIT Most importantly, Logan is a great name and congratulations on a baby boy.
Thoughts and prayers for you, your family and Logan. Please do keep us updated so we can help support you.
I'm so sorry you are going through this. I can't even imagine how stressful this must be, but you sound like you have a great attitude, and a wonderful team of doctors on your side. As you know, there are varying degrees of severity with SB. I know a girl who has it, and I had known her for years before I even found out.
I think blogging sounds like a great idea, as it'll help you personally to get your thoughts and emotions out, and you may end up helping someone going through something similar. I would also check out the special needs board on this site. I'm not sure what the dynamic is of that board, but it can't hurt to check it out. I'm sure there are support groups elsewhere online too.
And of course, we are always here for you too! Please keep us posted. ((hugs))
BFP #2 8/22/12 | EDD 5/5/13 | DS1 born 5/9/13
BFP #3 4/25/15 | EDD 1/7/16 | MMC 7/2/15 @ 13w1d | D&E 7/8/15
BFP #4 12/9/15 | EDD 8/22/16 | DS2 born 5/18/16 at 26w2d
Just keep swimming.
I am so sorry! Sending you and little Logan lots pf prayers!
The special needs board on here is very informative and I think there are more specific special needs boards on Baby Center.